Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale

Pamela A. Kisala, David S. Tulsky*, Aaron J. Boulton, Allen W. Heinemann, David Victorson, Mark Sherer, Angelle M. Sander, Nancy Chiaravalloti, Noelle E. Carlozzi, Robin Hanks

*Corresponding author for this work

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Objective: To develop an item response theory (IRT)-calibrated, patient-reported outcome measure of subjective independence for individuals with traumatic brain injury (TBI). Design: Large-scale item calibration field testing; confirmatory factor analysis (CFA) and graded response model IRT analyses. Setting: Five TBI Model System centers across the United States. Participants: Adults with complicated mild, moderate, or severe TBI (N=556). Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Independence item bank and the TBI-QOL Asking for Help scale. Results: A total of 556 individuals completed 44 items in the Independence item pool. Initial factor analyses indicated that items related to the idea of “asking for help” were measuring a different construct from other items in the pool. These 9 items were set aside. Twenty-two other items were removed because of bimodal distributions and/or low item-total correlations. CFA supported unidimensionality of the remaining Independence items. Graded response model IRT analysis was used to estimate slopes and thresholds for the final 13 Independence items. An 8-item fixed-length short form was also developed. The 9 Asking for Help items were analyzed separately. One misfitting item was deleted, and the final 8 items became a fixed-length IRT-calibrated scale. Reliability was high for both measures. Conclusions: The IRT-calibrated TBI-QOL Independence item bank and short form and TBI-QOL Asking for Help scale may be used to measure important issues for individuals with TBI in research and clinical applications.

Original languageEnglish (US)
Pages (from-to)33-42
Number of pages10
JournalArchives of physical medicine and rehabilitation
Volume101
Issue number1
DOIs
StatePublished - Jan 2020

Fingerprint

Psychometrics
Statistical Factor Analysis
Traumatic Brain Injury
Calibration
Outcome Assessment (Health Care)
Brain
Research

Keywords

  • Brain injuries
  • Help-seeking behavior
  • Independent living
  • Patient outcome assessment
  • Personal autonomy
  • Rehabilitation

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

Cite this

Kisala, Pamela A. ; Tulsky, David S. ; Boulton, Aaron J. ; Heinemann, Allen W. ; Victorson, David ; Sherer, Mark ; Sander, Angelle M. ; Chiaravalloti, Nancy ; Carlozzi, Noelle E. ; Hanks, Robin. / Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale. In: Archives of physical medicine and rehabilitation. 2020 ; Vol. 101, No. 1. pp. 33-42.
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Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale. / Kisala, Pamela A.; Tulsky, David S.; Boulton, Aaron J.; Heinemann, Allen W.; Victorson, David; Sherer, Mark; Sander, Angelle M.; Chiaravalloti, Nancy; Carlozzi, Noelle E.; Hanks, Robin.

In: Archives of physical medicine and rehabilitation, Vol. 101, No. 1, 01.2020, p. 33-42.

Research output: Contribution to journalArticle

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T1 - Development and Psychometric Characteristics of the TBI-QOL Independence Item Bank and Short Form and the TBI-QOL Asking for Help Scale

AU - Kisala, Pamela A.

AU - Tulsky, David S.

AU - Boulton, Aaron J.

AU - Heinemann, Allen W.

AU - Victorson, David

AU - Sherer, Mark

AU - Sander, Angelle M.

AU - Chiaravalloti, Nancy

AU - Carlozzi, Noelle E.

AU - Hanks, Robin

PY - 2020/1

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KW - Independent living

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KW - Personal autonomy

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