Development of a Pediatric Palliative Care Curriculum and Dissemination Model

Education in Palliative and End-of-Life Care (EPEC) Pediatrics

Stefan J. Friedrichsdorf*, Stacy Remke, Joshua M Hauser, Laurie Foster, Andrea Postier, Alison Kolste, Joanne Wolfe

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Context: Most children living and dying with serious illnesses experience high burden of distressing symptoms. Many seriously ill children and their families do not have access to subspecialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. Lack of PPC education appears to be a significant barrier to PPC implementation. Objectives: Description of the development and dissemination of Education in Palliative and End-of-Life Care (EPEC)-Pediatrics. Methods: Funded through a U.S. $1.6 million National Institutes of Health/National Cancer Institute grant 2010–2017, this 24-module curriculum was designed to teach primary palliative care. The target audience included interprofessional pediatric hematology/oncology providers and all other clinicians caring for seriously ill children. Results: The curriculum is delivered in a combination of online learning and in-person, face-to-face sessions. In addition, a one-day Professional Development Workshop was developed to teach EPEC-Pediatrics graduates, future “Trainers,” thus becoming “Master Facilitators.” Between 2012–May 2019, a total of 867 EPEC-Pediatric Trainers and 75 Master Facilitators from 58 countries participated in 17 Become an EPEC-Pediatrics-Trainer conferences and three Professional Development Workshops. The curriculum has also been adapted for large-scale dissemination across Canada and Latin-America, with translation to French and Spanish. Participants overwhelmingly report improvements in their PPC knowledge, attitudes, and skills, including teaching. Trainers subsequently anticipated improvements in patient care for children with serious illness at their home institutions. Conclusion: EPEC-Pediatrics has developed into the most comprehensive PPC curriculum worldwide. It is highly adaptable for local settings, became self-sustaining and six conferences are offered around the world in 2019.

Original languageEnglish (US)
JournalJournal of Pain and Symptom Management
DOIs
StatePublished - Jan 1 2019

Fingerprint

Terminal Care
Palliative Care
Curriculum
Pediatrics
Education
National Cancer Institute (U.S.)
Latin America
Organized Financing
National Institutes of Health (U.S.)
Hematology
Canada
Primary Health Care
Patient Care
Teaching
Learning

Keywords

  • curriculum
  • dissemination
  • education
  • Pediatric palliative care
  • post-graduate teaching
  • Train-the-Trainer

ASJC Scopus subject areas

  • Nursing(all)
  • Clinical Neurology
  • Anesthesiology and Pain Medicine

Cite this

@article{86e97e6e0a4c40fb955be2b9b6bbd3c7,
title = "Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics",
abstract = "Context: Most children living and dying with serious illnesses experience high burden of distressing symptoms. Many seriously ill children and their families do not have access to subspecialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. Lack of PPC education appears to be a significant barrier to PPC implementation. Objectives: Description of the development and dissemination of Education in Palliative and End-of-Life Care (EPEC)-Pediatrics. Methods: Funded through a U.S. $1.6 million National Institutes of Health/National Cancer Institute grant 2010–2017, this 24-module curriculum was designed to teach primary palliative care. The target audience included interprofessional pediatric hematology/oncology providers and all other clinicians caring for seriously ill children. Results: The curriculum is delivered in a combination of online learning and in-person, face-to-face sessions. In addition, a one-day Professional Development Workshop was developed to teach EPEC-Pediatrics graduates, future “Trainers,” thus becoming “Master Facilitators.” Between 2012–May 2019, a total of 867 EPEC-Pediatric Trainers and 75 Master Facilitators from 58 countries participated in 17 Become an EPEC-Pediatrics-Trainer conferences and three Professional Development Workshops. The curriculum has also been adapted for large-scale dissemination across Canada and Latin-America, with translation to French and Spanish. Participants overwhelmingly report improvements in their PPC knowledge, attitudes, and skills, including teaching. Trainers subsequently anticipated improvements in patient care for children with serious illness at their home institutions. Conclusion: EPEC-Pediatrics has developed into the most comprehensive PPC curriculum worldwide. It is highly adaptable for local settings, became self-sustaining and six conferences are offered around the world in 2019.",
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author = "Friedrichsdorf, {Stefan J.} and Stacy Remke and Hauser, {Joshua M} and Laurie Foster and Andrea Postier and Alison Kolste and Joanne Wolfe",
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Development of a Pediatric Palliative Care Curriculum and Dissemination Model : Education in Palliative and End-of-Life Care (EPEC) Pediatrics. / Friedrichsdorf, Stefan J.; Remke, Stacy; Hauser, Joshua M; Foster, Laurie; Postier, Andrea; Kolste, Alison; Wolfe, Joanne.

In: Journal of Pain and Symptom Management, 01.01.2019.

Research output: Contribution to journalArticle

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AU - Wolfe, Joanne

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