Different strokes of different folks

Searching for health narratives in weblogs

Andrew S. Gordon*, Christopher Wienberg, Sara Owsley Sood

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference contribution

7 Citations (Scopus)

Abstract

The utility of storytelling in the interaction between healthcare providers and patients is now firmly established, but the potential use of large-scale story collections for health-related inquiry has not yet been explored. In particular, the enormous scale of storytelling in personal web logs offers investigators in health-related fields new opportunities to study the behavior and beliefs of diverse patient populations outside of clinical settings. In this paper we address the technical challenges in identifying personal stories about specific health issues from corpora of millions of web log posts. We describe a novel infrastructure for collecting and indexing the stories posted each day to English-language web logs, coupled with user interfaces designed to support targeted searches of these collections. We evaluate the effectiveness of this search technology in an effort to identify hundreds of first person and third person accounts of strokes, for the purpose of studying gender differences in the way that these health emergencies are described. Results indicate that the use of relevance feedback significantly improves the effectiveness of the search. We conclude with a discussion of sample biases that are inherent in web log storytelling and heightened by our approach, and propose ways to mitigate these biases.

Original languageEnglish (US)
Title of host publicationProceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012
Pages490-495
Number of pages6
DOIs
StatePublished - Dec 1 2012
Event2012 ASE/IEEE International Conference on Social Computing, SocialCom 2012 and the 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust, PASSAT 2012 - Amsterdam, Netherlands
Duration: Sep 3 2012Sep 5 2012

Publication series

NameProceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012

Other

Other2012 ASE/IEEE International Conference on Social Computing, SocialCom 2012 and the 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust, PASSAT 2012
CountryNetherlands
CityAmsterdam
Period9/3/129/5/12

Fingerprint

Health
User interfaces
Feedback

Keywords

  • health
  • information retrieval
  • storytelling
  • weblogs

ASJC Scopus subject areas

  • Safety, Risk, Reliability and Quality

Cite this

Gordon, A. S., Wienberg, C., & Sood, S. O. (2012). Different strokes of different folks: Searching for health narratives in weblogs. In Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012 (pp. 490-495). [6406391] (Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012). https://doi.org/10.1109/SocialCom-PASSAT.2012.43
Gordon, Andrew S. ; Wienberg, Christopher ; Sood, Sara Owsley. / Different strokes of different folks : Searching for health narratives in weblogs. Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012. 2012. pp. 490-495 (Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012).
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abstract = "The utility of storytelling in the interaction between healthcare providers and patients is now firmly established, but the potential use of large-scale story collections for health-related inquiry has not yet been explored. In particular, the enormous scale of storytelling in personal web logs offers investigators in health-related fields new opportunities to study the behavior and beliefs of diverse patient populations outside of clinical settings. In this paper we address the technical challenges in identifying personal stories about specific health issues from corpora of millions of web log posts. We describe a novel infrastructure for collecting and indexing the stories posted each day to English-language web logs, coupled with user interfaces designed to support targeted searches of these collections. We evaluate the effectiveness of this search technology in an effort to identify hundreds of first person and third person accounts of strokes, for the purpose of studying gender differences in the way that these health emergencies are described. Results indicate that the use of relevance feedback significantly improves the effectiveness of the search. We conclude with a discussion of sample biases that are inherent in web log storytelling and heightened by our approach, and propose ways to mitigate these biases.",
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Gordon, AS, Wienberg, C & Sood, SO 2012, Different strokes of different folks: Searching for health narratives in weblogs. in Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012., 6406391, Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012, pp. 490-495, 2012 ASE/IEEE International Conference on Social Computing, SocialCom 2012 and the 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust, PASSAT 2012, Amsterdam, Netherlands, 9/3/12. https://doi.org/10.1109/SocialCom-PASSAT.2012.43

Different strokes of different folks : Searching for health narratives in weblogs. / Gordon, Andrew S.; Wienberg, Christopher; Sood, Sara Owsley.

Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012. 2012. p. 490-495 6406391 (Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012).

Research output: Chapter in Book/Report/Conference proceedingConference contribution

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Gordon AS, Wienberg C, Sood SO. Different strokes of different folks: Searching for health narratives in weblogs. In Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012. 2012. p. 490-495. 6406391. (Proceedings - 2012 ASE/IEEE International Conference on Privacy, Security, Risk and Trust and 2012 ASE/IEEE International Conference on Social Computing, SocialCom/PASSAT 2012). https://doi.org/10.1109/SocialCom-PASSAT.2012.43