Divergent views of hope influencing communications between parents and hospital providers

Cecelia I. Roscigno; Teresa A. Savage; Karen Kavanaugh; Teresa T. Moro; Sarah J. Kilpatrick; Howard T. Strassner; William A. Grobman; Robert E. Kimura

doi:10.1177/1049732312449210

Divergent views of hope influencing communications between parents and hospital providers

Cecelia I. Roscigno^*, Teresa A. Savage, Karen Kavanaugh, Teresa T. Moro, Sarah J. Kilpatrick, Howard T. Strassner, William A. Grobman, Robert E. Kimura

^*Corresponding author for this work

Obstetrics and Gynecology

Research output: Contribution to journal › Article › peer-review

54 Scopus citations

Abstract

This study evaluated parents' and health care providers' (HCPs) descriptions of hope following counseling of parents at risk of delivering an extremely premature infant. Data came from a longitudinal multiple case study investigation that examined the decision making and support needs of 40 families and their providers. Semistructured interviews were conducted before and after delivery. Divergent viewpoints of hope were found between parents and many HCPs and were subsequently coded using content analysis. Parents relied on hope as an emotional motivator, whereas most HCPs described parents' notions of hope as out of touch with reality. Parents perceived that such divergent beliefs about the role of hope negatively shaped communicative interactions and reduced trust with some of their providers. A deeper understanding of how varying views of hope might shape communications will uncover future research questions and lead to theory-based interventions aimed at improving the process of discussing difficult news with parents.

Original language	English (US)
Pages (from-to)	1232-1246
Number of pages	15
Journal	Qualitative Health Research
Volume	22
Issue number	9
DOIs	https://doi.org/10.1177/1049732312449210
State	Published - Sep 2012

Keywords

communication, medical
content analysis
culture / cultural competence
decision making
disability / disabled persons
end-of-life issues
infants, high-risk, parenting
pregnancy, high-risk
relationships, health care

ASJC Scopus subject areas

Public Health, Environmental and Occupational Health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1177/1049732312449210

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title = "Divergent views of hope influencing communications between parents and hospital providers",

abstract = "This study evaluated parents' and health care providers' (HCPs) descriptions of hope following counseling of parents at risk of delivering an extremely premature infant. Data came from a longitudinal multiple case study investigation that examined the decision making and support needs of 40 families and their providers. Semistructured interviews were conducted before and after delivery. Divergent viewpoints of hope were found between parents and many HCPs and were subsequently coded using content analysis. Parents relied on hope as an emotional motivator, whereas most HCPs described parents' notions of hope as out of touch with reality. Parents perceived that such divergent beliefs about the role of hope negatively shaped communicative interactions and reduced trust with some of their providers. A deeper understanding of how varying views of hope might shape communications will uncover future research questions and lead to theory-based interventions aimed at improving the process of discussing difficult news with parents.",

keywords = "communication, medical, content analysis, culture / cultural competence, decision making, disability / disabled persons, end-of-life issues, infants, high-risk, parenting, pregnancy, high-risk, relationships, health care",

author = "Roscigno, {Cecelia I.} and Savage, {Teresa A.} and Karen Kavanaugh and Moro, {Teresa T.} and Kilpatrick, {Sarah J.} and Strassner, {Howard T.} and Grobman, {William A.} and Kimura, {Robert E.}",

note = "Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by Grants R01 07904 and P30 NR010680 from the National Institute of Nursing Research. The first author{\textquoteright}s training for the analysis and preparation of this article was supported by the Irving B. Harris Foundation Faculty Scholars Initiative. Revisions were made while she was supported by NINR T32NR0007091, Interventions for Prevention & Managing Chronic Illness, at the University of North Carolina, Chapel Hill.",

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AU - Strassner, Howard T.

AU - Grobman, William A.

AU - Kimura, Robert E.

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PY - 2012/9

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Divergent views of hope influencing communications between parents and hospital providers

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

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