Eliciting patient and caregiver perspectives to improve the public reporting of rehabilitation quality measures

Christina Papadimitriou*, Susan Magasi, Holly Demark, Caitlin Taylor, Michael Wolf, Allen Walter Heinemann, Anne Frances Deutsch

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

6 Scopus citations

Abstract

Purpose: To evaluate patients' and caregivers' abilities to comprehend information on rehabilitation quality measures, and select high-quality rehabilitation facility. Design: We used exploratory, qualitative study using cognitive interviewing. Setting: Three Outpatient rehabilitation facilities in metropolitan Chicago, Illinois, USA. Participants: The study participants included 27 patients or three caregivers, 63% female; 36.7% white, 43.3% African American, 10% Asian, 10% missing/other; health literacy: 59% at the 8th grade level or lower; age range: 33-94. Main Outcome Measure(s): Patient and caregiver comprehension of quality measures. Results: Respondents understood some rehabilitation quality terms, but had difficulty with medical terminology; linking quality measures to hospital quality; explaining choice of "better" quality facility; and reading tables. The research team simplified terminology, definitions, layout, and design; added an introduction to provide a framework for understanding quality. Conclusions: Quality measure information can be difficult to understand and use. When reporting quality measures, use plain language, avoid medical jargon, follow logically sequenced content, easy-to-read layout, provide framework for understanding quality, and solicit consumer feedback.

Original languageEnglish (US)
Pages (from-to)24-31
Number of pages8
JournalRehabilitation Nursing
Volume38
Issue number1
DOIs
StatePublished - Jan 1 2013

Keywords

  • Health care (170)
  • Quality indicators
  • Rehabilitation

ASJC Scopus subject areas

  • Nursing(all)
  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

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