Abstract
Background: Personal health records (PHRs) are designed to help people manage information about their health. Over the past decade, there has been a proliferation of PHRs, but research regarding their effects on clinical, behavioral, and financial outcomes remains limited. The potential for PHRs to facilitate patient-centered care and health system transformation underscores the importance of embracing a broader perspective on PHR research. Objective: Drawing from the experiences of VA staff to evaluate the My HealtheVet (MHV) PHR, this article advocates for a health services research perspective on the study of PHR systems. Methods: We describe an organizing framework and research agenda, and offer insights that have emerged from our ongoing efforts regarding the design of PHR-related studies, the need to address PHR data ownership and consent, and the promotion of effective PHR research collaborations. Conclusion: These lessons are applicable to other PHR systems and the conduct of PHR research across different organizational contexts.
Original language | English (US) |
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Pages (from-to) | S62-S67 |
Journal | Journal of general internal medicine |
Volume | 25 |
Issue number | SUPPL. 1 |
DOIs | |
State | Published - Jan 2010 |
Keywords
- Health information
- Health services research
- PHR
- Personal health records
ASJC Scopus subject areas
- Internal Medicine