Abstract
Aim: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma. Methods: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate. Results: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools. Conclusion: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 17-30 |
| Number of pages | 14 |
| Journal | Journal of Comparative Effectiveness Research |
| Volume | 5 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 2016 |
Funding
The authors gratefully acknowledge the help of T MacTavish, IIT Institute of Design; JT Senko, JH Stroger, Jr Hospital of Cook County; CJ Lohff, Chicago Department of Public Health; ZE Pittsenbarger, Ann and Robert H Lurie Children''s Hospital of Chicago; J E Kramer, Rush University Medical Center; H Margellos-Anast, LS Zun, Mount Sinai Hospital; SM Paik and J Solway, University of Chicago; ML Berbaum, N Bracken, and HA Gussin, for their role in the development of the CHICAGO comparative effectiveness trial. The authors thank L Sanker for her help in the development and conduct of focus groups. The authors also thank the families and the staff in the CHICAGO ED clinical centers and partner organizations who contributed their time to make this study possible. The study was sponsored by the Patient-Centered Outcomes Research Institute (contract #AS-1307-05420). The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. The authors gratefully acknowledge the help of T MacTavish, IIT Institute of Design; JT Senko, JH Stroger, Jr Hospital of Cook County; CJ Lohff, Chicago Department of Public Health; ZE Pittsenbarger, Ann and Robert H Lurie Children''s Hospital of Chicago; J E Kramer, Rush University Medical Center; H Margellos-Anast, LS Zun, Mount Sinai Hospital; SM Paik and J Solway, University of Chicago; ML Berbaum, N Bracken, and HA Gussin, for their role in the development of the CHICAGO comparative effectiveness trial. The authors thank L Sanker for her help in the development and conduct of focus groups. The authors also thank the families and the staff in the CHICAGO ED clinical centers and partner organizations who contributed their time to make this study possible. The study was sponsored by the Patient-Centered Outcomes Research Institute (contract #AS-1307-05420). The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or fi?nancial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed.
Keywords
- asthma
- health communication
- patient discharge
- pediatrics
- stakeholder engagement
- written action plan
ASJC Scopus subject areas
- Health Policy
