Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma

Kim Erwin*, Molly A. Martin, Tara Flippin, Sarah Norell, Ariana Shadlyn, Jie Yang, Paula Falco, Jaime Rivera, Stacy Ignoffo, Rajesh Kumar, Helen Margellos-Anast, Michael McDermott, Kate McMahon, Giselle Mosnaim, Sharmilee M. Nyenhuis, Valerie G. Press, Jessica E. Ramsay, Kenneth Soyemi, Trevonne M. Thompson, Jerry A. Krishnan

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

15 Scopus citations

Abstract

Aim: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma. Methods: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate. Results: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools. Conclusion: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.

Original languageEnglish (US)
Pages (from-to)17-30
Number of pages14
JournalJournal of Comparative Effectiveness Research
Volume5
Issue number1
DOIs
StatePublished - Jan 2016

Keywords

  • asthma
  • health communication
  • patient discharge
  • pediatrics
  • stakeholder engagement
  • written action plan

ASJC Scopus subject areas

  • Health Policy

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