Engaging Youth in Bladder Health Research: Perspectives from a National Consortium’s Young Women’s Health Council

Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium*

doi:10.1353/cpr.2025.a965366

Engaging Youth in Bladder Health Research: Perspectives from a National Consortium’s Young Women’s Health Council

Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium*

Research output: Contribution to journal › Article › peer-review

Abstract

Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women’s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council’s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.

Original language	English (US)
Pages (from-to)	271-277
Number of pages	7
Journal	Progress in Community Health Partnerships: Research, Education, and Action
Volume	19
Issue number	2
DOIs	https://doi.org/10.1353/cpr.2025.a965366
State	Published - Jun 2025

Funding

This work was supported by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health (NIH) by cooperative agreements [grants U24DK106786, U01 DK106853, U01 DK106858, U01 DK106898, U01 DK106893, U01 DK106827, U01 DK106908, U01 DK106892, U01 DK126045]. Additional funding from: National Institute on Aging, NIH Office of Research on Women’s Health. The content of this article is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. We thank the Young Women’s Health Council members for their contributions to PLUS research and for their insights and collaboration on this manuscript.

Keywords

Adolescent and Young Adults
Bladder Health
Community Engagement
Community Perspective
Youth Advisory Board

ASJC Scopus subject areas

Health(social science)
Education
Sociology and Political Science

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1353/cpr.2025.a965366

Cite this

@article{29b0692a71f2457493df03662de1eb52,

title = "Engaging Youth in Bladder Health Research: Perspectives from a National Consortium{\textquoteright}s Young Women{\textquoteright}s Health Council",

abstract = "Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women{\textquoteright}s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council{\textquoteright}s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.",

keywords = "Adolescent and Young Adults, Bladder Health, Community Engagement, Community Perspective, Youth Advisory Board",

author = "\{Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium*\} and Ayah El-Fahmawi and Jessica Schwalb and Ciearria Samuel and Hannah Davidson and Johanna Lumbantobing and Jeni Hebert-Beirne and Peter Scal and Leena Wheeler and Fairis Cuneo and Janice Phillips and Cunningham, \{Shayna D.\} and Mueller, \{Elizabeth R.\} and Marian Acevedo-Alvarez and Fitzgerald, \{Colleen M.\} and Hardacker, \{Cecilia T.\} and Jeni Hebert-Beirne and Griffith, \{James W.\} and Kenton, \{Kimberly Sue\} and Melissa Simon and Oluwateniola Brown and Julia Geynisman-Tan and Margaret Mueller and Markland, \{Alayne D.\} and Vaughan, \{Camille P.\} and Tamera Coyne-Beasley and Burgio, \{Kathryn L.\} and Lewis, \{Cora E.\} and Williams, \{Beverly Rosa\} and Lukacz, \{Emily S.\} and Sheila Gahagan and LaCoursiere, \{D. Yvette\} and Jesse Nodora and Low, \{Lisa Kane\} and Miller, \{Janis M.\} and Abby Smith and Gerald McGwin and Rudser, \{Kyle D.\} and Brady, \{Sonya S.\} and Haitao Chu and Fok, \{Cynthia S.\} and Harlow, \{Bernard L.\} and Peter Scal and Todd Rockwood and Newman, \{Diane K.\} and Smith, \{Ariana L.\} and Amanda Berry and Andrea Bilger and Lipman, \{Terri H.\} and Heather Klusaritz and Stapleton, \{Ann E.\}",

note = "Publisher Copyright: {\textcopyright} 2025 Johns Hopkins University Press.",

year = "2025",

month = jun,

doi = "10.1353/cpr.2025.a965366",

language = "English (US)",

volume = "19",

pages = "271--277",

journal = "Progress in Community Health Partnerships: Research, Education, and Action",

issn = "1557-0541",

publisher = "Johns Hopkins University Press",

number = "2",

}

Engaging Youth in Bladder Health Research: Perspectives from a National Consortium’s Young Women’s Health Council. / Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium*.
In: Progress in Community Health Partnerships: Research, Education, and Action, Vol. 19, No. 2, 06.2025, p. 271-277.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Engaging Youth in Bladder Health Research

T2 - Perspectives from a National Consortium’s Young Women’s Health Council

AU - Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium

AU - El-Fahmawi, Ayah

AU - Schwalb, Jessica

AU - Samuel, Ciearria

AU - Davidson, Hannah

AU - Lumbantobing, Johanna

AU - Hebert-Beirne, Jeni

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AU - Wheeler, Leena

AU - Cuneo, Fairis

AU - Phillips, Janice

AU - Cunningham, Shayna D.

AU - Mueller, Elizabeth R.

AU - Acevedo-Alvarez, Marian

AU - Fitzgerald, Colleen M.

AU - Hardacker, Cecilia T.

AU - Hebert-Beirne, Jeni

AU - Griffith, James W.

AU - Kenton, Kimberly Sue

AU - Simon, Melissa

AU - Brown, Oluwateniola

AU - Geynisman-Tan, Julia

AU - Mueller, Margaret

AU - Markland, Alayne D.

AU - Vaughan, Camille P.

AU - Coyne-Beasley, Tamera

AU - Burgio, Kathryn L.

AU - Lewis, Cora E.

AU - Williams, Beverly Rosa

AU - Lukacz, Emily S.

AU - Gahagan, Sheila

AU - LaCoursiere, D. Yvette

AU - Nodora, Jesse

AU - Low, Lisa Kane

AU - Miller, Janis M.

AU - Smith, Abby

AU - McGwin, Gerald

AU - Rudser, Kyle D.

AU - Brady, Sonya S.

AU - Chu, Haitao

AU - Fok, Cynthia S.

AU - Harlow, Bernard L.

AU - Scal, Peter

AU - Rockwood, Todd

AU - Newman, Diane K.

AU - Smith, Ariana L.

AU - Berry, Amanda

AU - Bilger, Andrea

AU - Lipman, Terri H.

AU - Klusaritz, Heather

AU - Stapleton, Ann E.

PY - 2025/6

Y1 - 2025/6

N2 - Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women’s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council’s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.

AB - Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women’s Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council’s activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives.

KW - Adolescent and Young Adults

KW - Bladder Health

KW - Community Engagement

KW - Community Perspective

KW - Youth Advisory Board

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U2 - 10.1353/cpr.2025.a965366

DO - 10.1353/cpr.2025.a965366

M3 - Article

C2 - 40718925

AN - SCOPUS:105012514497

SN - 1557-0541

VL - 19

SP - 271

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JO - Progress in Community Health Partnerships: Research, Education, and Action

JF - Progress in Community Health Partnerships: Research, Education, and Action

IS - 2

ER -

Engaging Youth in Bladder Health Research: Perspectives from a National Consortium’s Young Women’s Health Council

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

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