Estimating rates of chronic fatigue syndrome from a community-based sample: A pilot study

Leonard A. Jason*, Renee Taylor, Lynne Wagner, Jay Holden, Joseph R. Ferrari, Audrius V. Plioplys, Sigita Plioplys, David Lipkin, Morris Papernik

*Corresponding author for this work

Research output: Contribution to journalArticle

62 Scopus citations

Abstract

Most of the Chronic Fatigue Syndrome (CFS) epidemiological studies have relied on physicians who refer patients having at least 6 months of chronic fatigue and other symptoms. However, there are a number of potential problems when using this method to derive prevalence statistics. For example, some individuals with CFS might not have the economic resources to access medical care. Other individuals with CFS might be reluctant to use medical personnel, particularly if they have encountered physicians skeptical of the authenticity of their illness. In addition, physicians that are skeptical of the existence of CFS might not identify cases. In the present pilot study, a random community sample (N=1,031) was interviewed by telephone in order to identify and comprehensively evaluate individuals with symptoms of CFS and those who self-report having CFS. Different definitions of CFS were employed, and higher rates (0.2%) of CFS were found than in previous studies. Methodological benefits in using more rigorous epidemiological methods when estimating CFS prevalence rates are discussed.

Original languageEnglish (US)
Pages (from-to)557-568
Number of pages12
JournalAmerican Journal of Community Psychology
Volume23
Issue number4
DOIs
StatePublished - Aug 1 1995

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Keywords

  • Chronic Fatigue Syndrome
  • community sample
  • epidemiology
  • immunological disorders

ASJC Scopus subject areas

  • Health(social science)
  • Applied Psychology
  • Public Health, Environmental and Occupational Health

Cite this

Jason, L. A., Taylor, R., Wagner, L., Holden, J., Ferrari, J. R., Plioplys, A. V., Plioplys, S., Lipkin, D., & Papernik, M. (1995). Estimating rates of chronic fatigue syndrome from a community-based sample: A pilot study. American Journal of Community Psychology, 23(4), 557-568. https://doi.org/10.1007/BF02506968