Evaluation of pediatrician adherence to the American Academy of pediatrics health supervision guidelines for down syndrome

Meghan E. O'Neill*, Alexandra Ryan, Soyang Kwon, Helen Binns

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

2 Scopus citations

Abstract

The American Academy of Pediatrics's guideline on health supervision for children with Down syndrome (DS) offers pediatricians guidance to improve detection of comorbid conditions. Pediatrician adherence has not yet been comprehensively evaluated. Medical records of 31 children with DS who received primary care at two urban academic clinic sites from 2008-2012 were reviewed. Data was extracted on adherence to age-specific individual guideline components for each subject by year-of-life (total 84 years-of-life). Overall adherence across all components was 83% (2001 guideline) and 67% (2011 guideline). Adherence to thyroid, hearing, vision, and developmental components was .85%, and anticipatory guidance regarding atlantoaxial instability and sexuality was < 35%. Overall adherence was higher when a subject was younger and when a provider was an attendinglevel pediatrician.

Original languageEnglish (US)
Pages (from-to)387-398
Number of pages12
JournalAmerican Journal on Intellectual and Developmental Disabilities
Volume123
Issue number5
DOIs
StatePublished - Sep 1 2018

Keywords

  • Adherence
  • Down syndrome
  • Guidelines

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Neuropsychology and Physiological Psychology
  • Developmental and Educational Psychology
  • Arts and Humanities (miscellaneous)
  • Clinical Neurology
  • Psychiatry and Mental health

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