Evaluation of pediatrician adherence to the American Academy of pediatrics health supervision guidelines for down syndrome

Meghan E. O'Neill; Alexandra Ryan; Soyang Kwon; Helen Binns

doi:10.1352/1944-7558-123.5.387

Evaluation of pediatrician adherence to the American Academy of pediatrics health supervision guidelines for down syndrome

Meghan E. O'Neill^*, Alexandra Ryan, Soyang Kwon, Helen Binns

^*Corresponding author for this work

Pediatrics

Research output: Contribution to journal › Review article › peer-review

2 Scopus citations

Abstract

The American Academy of Pediatrics's guideline on health supervision for children with Down syndrome (DS) offers pediatricians guidance to improve detection of comorbid conditions. Pediatrician adherence has not yet been comprehensively evaluated. Medical records of 31 children with DS who received primary care at two urban academic clinic sites from 2008-2012 were reviewed. Data was extracted on adherence to age-specific individual guideline components for each subject by year-of-life (total 84 years-of-life). Overall adherence across all components was 83% (2001 guideline) and 67% (2011 guideline). Adherence to thyroid, hearing, vision, and developmental components was .85%, and anticipatory guidance regarding atlantoaxial instability and sexuality was < 35%. Overall adherence was higher when a subject was younger and when a provider was an attendinglevel pediatrician.

Original language	English (US)
Pages (from-to)	387-398
Number of pages	12
Journal	American Journal on Intellectual and Developmental Disabilities
Volume	123
Issue number	5
DOIs	https://doi.org/10.1352/1944-7558-123.5.387
State	Published - Sep 1 2018

Keywords

Adherence
Down syndrome
Guidelines

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Neuropsychology and Physiological Psychology
Developmental and Educational Psychology
Arts and Humanities (miscellaneous)
Clinical Neurology
Psychiatry and Mental health

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Evaluation of pediatrician adherence to the American Academy of pediatrics health supervision guidelines for down syndrome. / O'Neill, Meghan E.; Ryan, Alexandra; Kwon, Soyang ; Binns, Helen.

In: American Journal on Intellectual and Developmental Disabilities, Vol. 123, No. 5, 01.09.2018, p. 387-398.

Research output: Contribution to journal › Review article › peer-review

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AU - Ryan, Alexandra

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