Abstract
The American Academy of Pediatrics's guideline on health supervision for children with Down syndrome (DS) offers pediatricians guidance to improve detection of comorbid conditions. Pediatrician adherence has not yet been comprehensively evaluated. Medical records of 31 children with DS who received primary care at two urban academic clinic sites from 2008-2012 were reviewed. Data was extracted on adherence to age-specific individual guideline components for each subject by year-of-life (total 84 years-of-life). Overall adherence across all components was 83% (2001 guideline) and 67% (2011 guideline). Adherence to thyroid, hearing, vision, and developmental components was .85%, and anticipatory guidance regarding atlantoaxial instability and sexuality was < 35%. Overall adherence was higher when a subject was younger and when a provider was an attendinglevel pediatrician.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 387-398 |
| Number of pages | 12 |
| Journal | American Journal on Intellectual and Developmental Disabilities |
| Volume | 123 |
| Issue number | 5 |
| DOIs | |
| State | Published - Sep 2018 |
Keywords
- Adherence
- Down syndrome
- Guidelines
ASJC Scopus subject areas
- Clinical Neurology
- Neuropsychology and Physiological Psychology
- Psychiatry and Mental health
- Developmental and Educational Psychology
- Arts and Humanities (miscellaneous)
- Pediatrics, Perinatology, and Child Health