Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait

Agatha M. Gallo*, Diana J. Wilkie, Edward Wang, Richard J. Labotka, Robert E. Molokie, Christiane Stahl, Patricia E. Hershberger, Zhongsheng Zhao, Marie L. Suarez, Bonnye Johnson, Cherese Pullum, Rigoberto Angulo, Alexis A Thompson

*Corresponding author for this work

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

The study purpose was to evaluate a computer-based questionnaire (SCKnowIQ) and CHOICES educational intervention using cognitive interviewing with childbearing-aged people with sickle cell disease (SCD) or trait (SCT). Ten control group participants completed the SCKnowIQ twice. Ten intervention group participants completed the SCKnowIQ before and after the CHOICES intervention. Most participants found the questionnaire items appropriate and responded to items as the investigators intended. Participants’ responses indicated that the information on SCD and SCT and reproductive options was understandable, balanced, important, and new to some. Internal consistency and test–retest reliability were adequate (.47 to.87) for 4 of the 6 scales, with significant within-group changes in knowledge scores for the intervention group but not for the control group. Findings show evidence for potential efficacy of the intervention, but proof of efficacy requires a larger randomized study.

Original languageEnglish (US)
Pages (from-to)421-441
Number of pages21
JournalClinical Nursing Research
Volume23
Issue number4
DOIs
StatePublished - Aug 1 2014

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Sickle Cell Trait
Sickle Cell Anemia
Young Adult
Control Groups
Research Personnel
Surveys and Questionnaires

Keywords

  • cognitive interviews
  • computer-based education
  • reproductive
  • sickle cell disease (SCD)
  • sickle cell trait (SCT)

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Gallo, Agatha M. ; Wilkie, Diana J. ; Wang, Edward ; Labotka, Richard J. ; Molokie, Robert E. ; Stahl, Christiane ; Hershberger, Patricia E. ; Zhao, Zhongsheng ; Suarez, Marie L. ; Johnson, Bonnye ; Pullum, Cherese ; Angulo, Rigoberto ; Thompson, Alexis A. / Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait. In: Clinical Nursing Research. 2014 ; Vol. 23, No. 4. pp. 421-441.
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Gallo, AM, Wilkie, DJ, Wang, E, Labotka, RJ, Molokie, RE, Stahl, C, Hershberger, PE, Zhao, Z, Suarez, ML, Johnson, B, Pullum, C, Angulo, R & Thompson, AA 2014, 'Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait', Clinical Nursing Research, vol. 23, no. 4, pp. 421-441. https://doi.org/10.1177/1054773813479377

Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait. / Gallo, Agatha M.; Wilkie, Diana J.; Wang, Edward; Labotka, Richard J.; Molokie, Robert E.; Stahl, Christiane; Hershberger, Patricia E.; Zhao, Zhongsheng; Suarez, Marie L.; Johnson, Bonnye; Pullum, Cherese; Angulo, Rigoberto; Thompson, Alexis A.

In: Clinical Nursing Research, Vol. 23, No. 4, 01.08.2014, p. 421-441.

Research output: Contribution to journalArticle

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