Expanding access to cancer peer support: Development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms

Katrin Bovbjerg, Kristi Graves, Margaret Waltz, David Farrell, Betina Yanez, Anthony Chicaiza, Rahma Omar, Rebecca Thompson, Mariska Kop, Alyssa N. Van Denburg, Danielle Lorch, Scott D. Rowley, Christine Rini*

*Corresponding author for this work

Research output: Contribution to journalConference articlepeer-review

3 Scopus citations

Abstract

Cancer patients often want information from "peers"with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website's ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients' written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development.

Original languageEnglish (US)
Pages (from-to)195-205
Number of pages11
JournalProcedia Computer Science
Volume206
DOIs
StatePublished - 2022
Event11th Scientific Meeting of the International Society for Research on Internet Interventions, ISRII 2022 - Pittsburgh, United States
Duration: Sep 18 2022Sep 22 2022

Keywords

  • hematopoietic stem cell translpant
  • stakeholder engagement
  • website development
  • written peer support

ASJC Scopus subject areas

  • General Computer Science

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