TY - JOUR
T1 - Family perspectives on the hospice experience in adult family homes
AU - Washington, Karla T.
AU - Oliver, Debra Parker
AU - Demiris, George
AU - Wittenberg-Lyles, Elaine
AU - Shaunfield, Sara
N1 - Funding Information:
Received 25 May 2010; accepted 26 October 2010. This project was funded by the National Institutes of Health, National Institute on Nursing Research Grant R21NR010744 (G. Demiris, Principal Investigator). Address correspondence to Karla T. Washington, MSW, PhD, Kent School of Social Work, University of Louisville, 217 Oppenheimer Hall, Louisville, KY 40292, USA. E-mail: karla.washington@louisville.edu
PY - 2011/1/14
Y1 - 2011/1/14
N2 - Growing numbers of terminally ill older adults receive hospice services in adult family homes (AFHs); however, little is known about the provision and receipt of end-of-life care in such environments. This article reports findings from a qualitative exploration of family members' perspectives of the hospice experience in AFHs. Analysis of data obtained during interviews of 15 residents' family members exposed significant challenges associated with transition to an AFH, highlighted the importance of AFH and hospice staff in family members' assessment of overall quality of care, and emphasized the critical nature of communication in AFH settings.
AB - Growing numbers of terminally ill older adults receive hospice services in adult family homes (AFHs); however, little is known about the provision and receipt of end-of-life care in such environments. This article reports findings from a qualitative exploration of family members' perspectives of the hospice experience in AFHs. Analysis of data obtained during interviews of 15 residents' family members exposed significant challenges associated with transition to an AFH, highlighted the importance of AFH and hospice staff in family members' assessment of overall quality of care, and emphasized the critical nature of communication in AFH settings.
KW - Adult family home
KW - Family
KW - Hospices
KW - Long-term care
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U2 - 10.1080/01634372.2010.536833
DO - 10.1080/01634372.2010.536833
M3 - Article
C2 - 21240714
AN - SCOPUS:78651500747
VL - 54
SP - 159
EP - 174
JO - Journal of Gerontological Social Work
JF - Journal of Gerontological Social Work
SN - 0163-4372
IS - 2
ER -