Family perspectives on the hospice experience in adult family homes

Karla T. Washington; Debra Parker Oliver; George Demiris; Elaine Wittenberg-Lyles; Sara Shaunfield

doi:10.1080/01634372.2010.536833

Family perspectives on the hospice experience in adult family homes

Karla T. Washington, Debra Parker Oliver, George Demiris, Elaine Wittenberg-Lyles, Sara Shaunfield

Medical Social Sciences

Research output: Contribution to journal › Article

3 Scopus citations

Abstract

Growing numbers of terminally ill older adults receive hospice services in adult family homes (AFHs); however, little is known about the provision and receipt of end-of-life care in such environments. This article reports findings from a qualitative exploration of family members' perspectives of the hospice experience in AFHs. Analysis of data obtained during interviews of 15 residents' family members exposed significant challenges associated with transition to an AFH, highlighted the importance of AFH and hospice staff in family members' assessment of overall quality of care, and emphasized the critical nature of communication in AFH settings.

Original language	English (US)
Pages (from-to)	159-174
Number of pages	16
Journal	Journal of Gerontological Social Work
Volume	54
Issue number	2
DOIs	https://doi.org/10.1080/01634372.2010.536833
State	Published - Jan 14 2011

Keywords

Adult family home
Family
Hospices
Long-term care

ASJC Scopus subject areas

Social Sciences (miscellaneous)
Nursing (miscellaneous)

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Washington, K. T., Oliver, D. P., Demiris, G., Wittenberg-Lyles, E., & Shaunfield, S. (2011). Family perspectives on the hospice experience in adult family homes. Journal of Gerontological Social Work, 54(2), 159-174. https://doi.org/10.1080/01634372.2010.536833

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