Fear of Dementia and the Obligation to Provide Aggregate Research Results to Study Participants

MacKenzie Graham, Francesca Farina, Craig W. Ritchie, Brian Lawlor, Lorina Naci*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

A general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue that considerations of respect for persons, beneficence, and justice fail to justify an obligation to make aggregate research results available to participants in dementia research. Nevertheless, there are positive reasons in favor of making aggregate research results available; when the decision is made to do so, it is critical that a clear strategy for communicating results is developed, including what support will be provided to participants receiving aggregate research results.

Original languageEnglish (US)
Pages (from-to)498-505
Number of pages8
JournalCambridge Quarterly of Healthcare Ethics
Volume31
Issue number4
DOIs
StatePublished - Oct 1 2022

Keywords

  • Alzheimer's disease
  • Dementia
  • biomarkers
  • ethics
  • imaging
  • research results

ASJC Scopus subject areas

  • Health(social science)
  • Health Policy
  • Issues, ethics and legal aspects

Fingerprint

Dive into the research topics of 'Fear of Dementia and the Obligation to Provide Aggregate Research Results to Study Participants'. Together they form a unique fingerprint.

Cite this