TY - JOUR
T1 - Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families
AU - Lerret, Stacee M.
AU - Schiffman, Rachel
AU - White-Traut, Rosemary
AU - Medoff-Cooper, Barbara
AU - Ahamed, Sheikh Iqbal
AU - Adib, Riddhiman
AU - Liegl, Melodee
AU - Alonso, Estella
AU - Mavis, Alisha Michelle
AU - Jensen, Kyle
AU - Peterson, Caitlin G.
AU - Neighbors, Katie
AU - Riordan, Mary K.
AU - Semp, Melissa C.
AU - Vo, Truc
AU - Stendahl, Gail
AU - Chapman, Shelley
AU - Unteutsch, Rachel
AU - Simpson, Pippa
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Research reported in this publication was supported by the National Institute of Nursing Research of the National Institutes of Health under Award Number K23NR017652.
Publisher Copyright:
© The Author(s) 2021.
PY - 2022/10
Y1 - 2022/10
N2 - Families of pediatric solid organ transplant recipients need ongoing education and support in the first 30 days following hospital discharge for the transplantation. The purpose of this report is to describe the feasibility, acceptability, and preliminary efficacy of a mHealth family-self management intervention, (myFAMI), designed to improve post-discharge outcomes of coping, family quality of life, self-efficacy, family self-management, and utilization of health care resources. We enrolled 46 primary family members. myFAMI was feasible and acceptable; 81% (n=17/21) of family members completed the app at least 24/30 days (goal 80% completion rate). Family members generated 134 trigger alerts and received a nurse response within the goal timeframe of < 2 h 99% of the time. Although there were no significant differences between groups, primary outcomes were in the expected direction. The intervention was well received and is feasible for future post-discharge interventions for families of children who receive an organ transplant.
AB - Families of pediatric solid organ transplant recipients need ongoing education and support in the first 30 days following hospital discharge for the transplantation. The purpose of this report is to describe the feasibility, acceptability, and preliminary efficacy of a mHealth family-self management intervention, (myFAMI), designed to improve post-discharge outcomes of coping, family quality of life, self-efficacy, family self-management, and utilization of health care resources. We enrolled 46 primary family members. myFAMI was feasible and acceptable; 81% (n=17/21) of family members completed the app at least 24/30 days (goal 80% completion rate). Family members generated 134 trigger alerts and received a nurse response within the goal timeframe of < 2 h 99% of the time. Although there were no significant differences between groups, primary outcomes were in the expected direction. The intervention was well received and is feasible for future post-discharge interventions for families of children who receive an organ transplant.
KW - Discharge
KW - Family
KW - Pediatric
KW - Self-management
KW - Transplant
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U2 - 10.1177/01939459211024656
DO - 10.1177/01939459211024656
M3 - Article
C2 - 34154460
AN - SCOPUS:85108605092
SN - 0193-9459
VL - 44
SP - 955
EP - 965
JO - Western Journal of Nursing Research
JF - Western Journal of Nursing Research
IS - 10
ER -