Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU

Kathleen L. Meert*, Susan Eggly, Robert A. Berg, David L. Wessel, Christopher J L Newth, Thomas P. Shanley, Rick Harrison, Heidi Dalton, Amy E. Clark, J. Michael Dean, Allan Doctor, Carol E. Nicholson

*Corresponding author for this work

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

OBJECTIVE:: To evaluate the feasibility and perceived benefits of conducting physician-parent follow-up meetings after a child's death in the PICU according to a framework developed by the Collaborative Pediatric Critical Care Research Network. DESIGN:: Prospective observational study. SETTING:: Seven Collaborative Pediatric Critical Care Research Network-affiliated children's hospitals. SUBJECTS:: Critical care attending physicians, bereaved parents, and meeting guests (i.e., parent support persons, other health professionals). INTERVENTIONS:: Physician-parent follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework. MEASUREMENTS AND MAIN RESULTS:: Forty-six critical care physicians were trained to conduct follow-up meetings using the framework. All meetings were video recorded. Videos were evaluated for the presence or absence of physician behaviors consistent with the framework. Present behaviors were evaluated for performance quality using a 5-point scale (1 = low, 5 = high). Participants completed meeting evaluation surveys. Parents of 194 deceased children were mailed an invitation to a follow-up meeting. Of these, one or both parents from 39 families (20%) agreed to participate, 80 (41%) refused, and 75 (39%) could not be contacted. Of 39 who initially agreed, three meetings were canceled due to conflicting schedules. Thirty-six meetings were conducted including 54 bereaved parents, 17 parent support persons, 23 critical care physicians, and 47 other health professionals. Physician adherence to the framework was high; 79% of behaviors consistent with the framework were rated as present with a quality score of 4.3 ± 0.2. Of 50 evaluation surveys completed by parents, 46 (92%) agreed or strongly agreed the meeting was helpful to them and 40 (89%) to others they brought with them. Of 36 evaluation surveys completed by critical care physicians (i.e., one per meeting), 33 (92%) agreed or strongly agreed the meeting was beneficial to parents and 31 (89%) to them. CONCLUSIONS:: Follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework are feasible and viewed as beneficial by meeting participants. Future research should evaluate the effects of follow-up meetings on bereaved parents' health outcomes.

Original languageEnglish (US)
Pages (from-to)148-157
Number of pages10
JournalCritical Care Medicine
Volume42
Issue number1
DOIs
StatePublished - Jan 1 2014

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Critical Care
Physicians
Parents
Pediatrics
Research
Health
Observational Studies
Appointments and Schedules
Prospective Studies
Surveys and Questionnaires

Keywords

  • bereavement
  • death
  • follow-up
  • intensive care
  • parents
  • pediatrics
  • physicians

ASJC Scopus subject areas

  • Critical Care and Intensive Care Medicine

Cite this

Meert, Kathleen L. ; Eggly, Susan ; Berg, Robert A. ; Wessel, David L. ; Newth, Christopher J L ; Shanley, Thomas P. ; Harrison, Rick ; Dalton, Heidi ; Clark, Amy E. ; Dean, J. Michael ; Doctor, Allan ; Nicholson, Carol E. / Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU. In: Critical Care Medicine. 2014 ; Vol. 42, No. 1. pp. 148-157.
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abstract = "OBJECTIVE:: To evaluate the feasibility and perceived benefits of conducting physician-parent follow-up meetings after a child's death in the PICU according to a framework developed by the Collaborative Pediatric Critical Care Research Network. DESIGN:: Prospective observational study. SETTING:: Seven Collaborative Pediatric Critical Care Research Network-affiliated children's hospitals. SUBJECTS:: Critical care attending physicians, bereaved parents, and meeting guests (i.e., parent support persons, other health professionals). INTERVENTIONS:: Physician-parent follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework. MEASUREMENTS AND MAIN RESULTS:: Forty-six critical care physicians were trained to conduct follow-up meetings using the framework. All meetings were video recorded. Videos were evaluated for the presence or absence of physician behaviors consistent with the framework. Present behaviors were evaluated for performance quality using a 5-point scale (1 = low, 5 = high). Participants completed meeting evaluation surveys. Parents of 194 deceased children were mailed an invitation to a follow-up meeting. Of these, one or both parents from 39 families (20{\%}) agreed to participate, 80 (41{\%}) refused, and 75 (39{\%}) could not be contacted. Of 39 who initially agreed, three meetings were canceled due to conflicting schedules. Thirty-six meetings were conducted including 54 bereaved parents, 17 parent support persons, 23 critical care physicians, and 47 other health professionals. Physician adherence to the framework was high; 79{\%} of behaviors consistent with the framework were rated as present with a quality score of 4.3 ± 0.2. Of 50 evaluation surveys completed by parents, 46 (92{\%}) agreed or strongly agreed the meeting was helpful to them and 40 (89{\%}) to others they brought with them. Of 36 evaluation surveys completed by critical care physicians (i.e., one per meeting), 33 (92{\%}) agreed or strongly agreed the meeting was beneficial to parents and 31 (89{\%}) to them. CONCLUSIONS:: Follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework are feasible and viewed as beneficial by meeting participants. Future research should evaluate the effects of follow-up meetings on bereaved parents' health outcomes.",
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author = "Meert, {Kathleen L.} and Susan Eggly and Berg, {Robert A.} and Wessel, {David L.} and Newth, {Christopher J L} and Shanley, {Thomas P.} and Rick Harrison and Heidi Dalton and Clark, {Amy E.} and Dean, {J. Michael} and Allan Doctor and Nicholson, {Carol E.}",
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Meert, KL, Eggly, S, Berg, RA, Wessel, DL, Newth, CJL, Shanley, TP, Harrison, R, Dalton, H, Clark, AE, Dean, JM, Doctor, A & Nicholson, CE 2014, 'Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU', Critical Care Medicine, vol. 42, no. 1, pp. 148-157. https://doi.org/10.1097/CCM.0b013e3182a26ff3

Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU. / Meert, Kathleen L.; Eggly, Susan; Berg, Robert A.; Wessel, David L.; Newth, Christopher J L; Shanley, Thomas P.; Harrison, Rick; Dalton, Heidi; Clark, Amy E.; Dean, J. Michael; Doctor, Allan; Nicholson, Carol E.

In: Critical Care Medicine, Vol. 42, No. 1, 01.01.2014, p. 148-157.

Research output: Contribution to journalArticle

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T1 - Feasibility and perceived benefits of a framework for physician-parent follow-up meetings after a child's death in the PICU

AU - Meert, Kathleen L.

AU - Eggly, Susan

AU - Berg, Robert A.

AU - Wessel, David L.

AU - Newth, Christopher J L

AU - Shanley, Thomas P.

AU - Harrison, Rick

AU - Dalton, Heidi

AU - Clark, Amy E.

AU - Dean, J. Michael

AU - Doctor, Allan

AU - Nicholson, Carol E.

PY - 2014/1/1

Y1 - 2014/1/1

N2 - OBJECTIVE:: To evaluate the feasibility and perceived benefits of conducting physician-parent follow-up meetings after a child's death in the PICU according to a framework developed by the Collaborative Pediatric Critical Care Research Network. DESIGN:: Prospective observational study. SETTING:: Seven Collaborative Pediatric Critical Care Research Network-affiliated children's hospitals. SUBJECTS:: Critical care attending physicians, bereaved parents, and meeting guests (i.e., parent support persons, other health professionals). INTERVENTIONS:: Physician-parent follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework. MEASUREMENTS AND MAIN RESULTS:: Forty-six critical care physicians were trained to conduct follow-up meetings using the framework. All meetings were video recorded. Videos were evaluated for the presence or absence of physician behaviors consistent with the framework. Present behaviors were evaluated for performance quality using a 5-point scale (1 = low, 5 = high). Participants completed meeting evaluation surveys. Parents of 194 deceased children were mailed an invitation to a follow-up meeting. Of these, one or both parents from 39 families (20%) agreed to participate, 80 (41%) refused, and 75 (39%) could not be contacted. Of 39 who initially agreed, three meetings were canceled due to conflicting schedules. Thirty-six meetings were conducted including 54 bereaved parents, 17 parent support persons, 23 critical care physicians, and 47 other health professionals. Physician adherence to the framework was high; 79% of behaviors consistent with the framework were rated as present with a quality score of 4.3 ± 0.2. Of 50 evaluation surveys completed by parents, 46 (92%) agreed or strongly agreed the meeting was helpful to them and 40 (89%) to others they brought with them. Of 36 evaluation surveys completed by critical care physicians (i.e., one per meeting), 33 (92%) agreed or strongly agreed the meeting was beneficial to parents and 31 (89%) to them. CONCLUSIONS:: Follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework are feasible and viewed as beneficial by meeting participants. Future research should evaluate the effects of follow-up meetings on bereaved parents' health outcomes.

AB - OBJECTIVE:: To evaluate the feasibility and perceived benefits of conducting physician-parent follow-up meetings after a child's death in the PICU according to a framework developed by the Collaborative Pediatric Critical Care Research Network. DESIGN:: Prospective observational study. SETTING:: Seven Collaborative Pediatric Critical Care Research Network-affiliated children's hospitals. SUBJECTS:: Critical care attending physicians, bereaved parents, and meeting guests (i.e., parent support persons, other health professionals). INTERVENTIONS:: Physician-parent follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework. MEASUREMENTS AND MAIN RESULTS:: Forty-six critical care physicians were trained to conduct follow-up meetings using the framework. All meetings were video recorded. Videos were evaluated for the presence or absence of physician behaviors consistent with the framework. Present behaviors were evaluated for performance quality using a 5-point scale (1 = low, 5 = high). Participants completed meeting evaluation surveys. Parents of 194 deceased children were mailed an invitation to a follow-up meeting. Of these, one or both parents from 39 families (20%) agreed to participate, 80 (41%) refused, and 75 (39%) could not be contacted. Of 39 who initially agreed, three meetings were canceled due to conflicting schedules. Thirty-six meetings were conducted including 54 bereaved parents, 17 parent support persons, 23 critical care physicians, and 47 other health professionals. Physician adherence to the framework was high; 79% of behaviors consistent with the framework were rated as present with a quality score of 4.3 ± 0.2. Of 50 evaluation surveys completed by parents, 46 (92%) agreed or strongly agreed the meeting was helpful to them and 40 (89%) to others they brought with them. Of 36 evaluation surveys completed by critical care physicians (i.e., one per meeting), 33 (92%) agreed or strongly agreed the meeting was beneficial to parents and 31 (89%) to them. CONCLUSIONS:: Follow-up meetings using the Collaborative Pediatric Critical Care Research Network framework are feasible and viewed as beneficial by meeting participants. Future research should evaluate the effects of follow-up meetings on bereaved parents' health outcomes.

KW - bereavement

KW - death

KW - follow-up

KW - intensive care

KW - parents

KW - pediatrics

KW - physicians

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