Fertility Preservation for a Teenager with Differences (Disorders) of Sex Development: An Ethics Case Study

Lisa Campo-Engelstein, Diane Chen, Arlene B. Baratz, Emilie K. Johnson, Courtney Finlayson

Research output: Contribution to journalArticle

Abstract

Fertility preservation has become more common for various populations, including oncology patients, transgender individuals, and women who are concerned about age-related infertility. Little attention has been paid to fertility preservation for patients with differences/disorders of sex development (DSD). Our goal in this article is to address specific ethical considerations that are unique to this patient population. To this end, we present a hypothetical DSD case. We then explore ethical considerations related to patient's age, risk of cancer, concern about genetic transmission of a DSD condition to children, co-occurring gender dysphoria, and access to experimental fertility preservation procedures. Given the limitations of current technologies, we recommend offering fertility preservation to individuals living with DSD using an informed decision-making approach that instills realistic expectations and minimizes the potential for false hope. Finally, we conclude with practical recommendations for this case based on the ethical considerations.

Original languageEnglish (US)
Pages (from-to)143-153
Number of pages11
JournalThe Journal of clinical ethics
Volume30
Issue number2
Publication statusPublished - Jun 1 2019

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ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health(social science)
  • Health Policy

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