Formative development of a fertility decision aid for transgender adolescents and young adults: a multidisciplinary Delphi consensus study

Victoria D. Kolbuck, Afiya Sajwani, Moira A. Kyweluk, Courtney Finlayson, Elisa J. Gordon, Diane Chen*

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Purpose: No educational and decision support tools exist to aid transgender and non-binary (TNB) adolescents and young adults (AYA) in making decisions about fertility preservation in the context of initiating gender-affirming medical care that can impair fertility. This study identified critical content areas and learning objectives to include in a decision aid about fertility preservation targeted for TNB AYA. Methods: Delphi methodology was leveraged to engage 80 multidisciplinary experts in reproductive medicine and pediatric transgender health care in a two round consensus building procedure. Proposed content areas rated as “probably keep” or “definitely keep” by 75% of experts were retained. Proposed learning objectives reaching 75% agreement on ratings of importance and priority were also identified. Results: The Delphi procedure identified five priority content areas (Basic Reproduction; Gender-Affirming Medical Interventions: Impacts on Fertility; Established Fertility Preservation Options; Benefits and Risks of Established Fertility Preservation Procedures; Alternative Pathways to Parenting) and 25 learning objectives to prioritize in a fertility-related decision aid for TNB AYA. Conclusion: A multidisciplinary panel of experts achieved agreement around content areas and learning objectives to incorporate into a decision aid about fertility preservation for TNB AYA.

Original languageEnglish (US)
JournalJournal of Assisted Reproduction and Genetics
DOIs
StateAccepted/In press - 2020

Keywords

  • Expert consensus
  • Fertility preservation
  • Gender diversity
  • Gender-affirming care
  • Shared decision-making

ASJC Scopus subject areas

  • Reproductive Medicine
  • Genetics
  • Obstetrics and Gynecology
  • Developmental Biology
  • Genetics(clinical)

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