Healthcare transition for patients with differences of sexual development and complex urogenital conditions

Veenod L. Chulani, Veronica Gomez-Lobo, Stephanie J. Kielb, Gwen M. Grimsby*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Scopus citations


Children with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical “safety net” and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being.

Original languageEnglish (US)
Article number150846
JournalSeminars in Pediatric Surgery
Issue number5
StatePublished - Oct 2019


  • Adolescence
  • Adult Model of Care
  • Disorders of sex development
  • Healthcare transition
  • Neurogenic Bladder
  • Transfer of care
  • Transition readiness

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Surgery


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