Identifying patient- and family-centered outcomes relevant to inpatient versus at-home management of neutropenia in children with acute myeloid leukemia

Julia E. Szymczak*, Kelly D. Getz, Rachel Madding, Brian Fisher, Elizabeth Raetz, Nobuko Hijiya, Maria M. Gramatges, Meret Henry, Amir Mian, Staci D. Arnold, Catherine Aftandilian, Anderson B. Collier, Richard Aplenc

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

Efficacy of therapeutic strategies relative to patient- and family-centered outcomes in pediatric oncology must be assessed. We sought to identify outcomes important to children with acute myeloid leukemia and their families related to inpatient versus at-home management of neutropenia. We conducted qualitative interviews with 32 children ≥8 years old and 54 parents. Analysis revealed the impact of neutropenia management strategy on siblings, parent anxiety, and child sleep quality as being outcomes of concern across respondents. These themes were used to inform the design of a questionnaire that is currently being used in a prospective, multiinstitutional comparative effectiveness trial.

Original languageEnglish (US)
Article numbere26927
JournalPediatric Blood and Cancer
Volume65
Issue number4
DOIs
StatePublished - Apr 2018

Keywords

  • acute myeloid leukemia
  • neutropenia
  • patient-reported outcomes
  • qualitative methodology

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Hematology
  • Oncology

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