Improvements in children with cerebral palsy following intrathecal baclofen: Use of the rehabilitation Institute of Chicago care and comfort caregiver questionnaire (RIC CareQ)

Karin W. Baker, Beverley Tann, Akmer Mutlu, Deborah J Gaebler-Spira

Research output: Contribution to journalArticle

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Abstract

Implantation of an intrathecal baclofen pump is recommended for children with cerebral palsy as a means to improve care and comfort when other options fail to control severe hypertonia. Making an assessment of a child's spasticity-related limitations in both routine care and activity is a necessary component of selection of intrathecal baclofen candidates. The Rehabilitation Institute of Chicago Care and Comfort Caregiver Questionnaire (RIC CareQ) is a validated, easy-to-use questionnaire that elicits information about the ease of daily activity and caregiving in patients with severe spasticity. Questionnaires completed by caregivers and patients at a pediatric physiatry spasticity clinic over an 11-year period were reviewed to evaluate whether the Rehabilitation Institute of Chicago Care and Comfort Caregiver Questionnaire captured improved caregiving and comfort of children with cerebral palsy and severe spasticity following intrathecal baclofen pump implantation. The Questionnaire scores showed improvement after intrathecal baclofen pump implantation, consistent with subjective reports of patient and caregiver satisfaction.

LanguageEnglish (US)
Pages312-317
Number of pages6
JournalJournal of Child Neurology
Volume29
Issue number3
DOIs
StatePublished - Mar 1 2014

Fingerprint

Baclofen
Cerebral Palsy
Caregivers
Rehabilitation
Physical and Rehabilitation Medicine
Patient Satisfaction
Surveys and Questionnaires
Patient Comfort
Pediatrics

Keywords

  • cerebral palsy
  • intrathecal baclofen
  • spasticity

ASJC Scopus subject areas

  • Clinical Neurology
  • Pediatrics, Perinatology, and Child Health

Cite this

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