"It can bring you in the right direction": Episode-Driven Data Narratives to Help Patients Navigate Multidimensional Diabetes Data to Make Care Decisions

Shriti Raj, Toshi Gupta, Joyce Lee, Matthew Kay, Mark W. Newman

Research output: Chapter in Book/Report/Conference proceedingConference contribution

4 Scopus citations

Abstract

Engaging with multiple streams of personal health data to inform self-care of chronic health conditions remains a challenge. Existing informatics tools provide limited support for patients to make data actionable. To design better tools, we conducted two studies with Type 1 diabetes patients and their clinicians. In the first study, we observed data review sessions between patients and clinicians to articulate the tasks involved in assessing different types of data from diabetes devices to make care decisions. Drawing upon these tasks, we designed novel data interfaces called episode-driven data narratives and performed a task-driven evaluation. We found that as compared to the commercially available diabetes data reports, episode-driven data narratives improved engagement and decision-making with data. We discuss implications for designing data interfaces to support interaction with multidimensional health data to inform self-care.

Original languageEnglish (US)
Title of host publicationCHI 2023 - Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery
ISBN (Electronic)9781450394215
DOIs
StatePublished - Apr 19 2023
Event2023 CHI Conference on Human Factors in Computing Systems, CHI 2023 - Hamburg, Germany
Duration: Apr 23 2023Apr 28 2023

Publication series

NameConference on Human Factors in Computing Systems - Proceedings

Conference

Conference2023 CHI Conference on Human Factors in Computing Systems, CHI 2023
Country/TerritoryGermany
CityHamburg
Period4/23/234/28/23

Keywords

  • decision-making
  • diabetes
  • diabetes data visualization
  • health data interface
  • human-data interaction
  • patient-generated data
  • personal health data
  • sensemaking

ASJC Scopus subject areas

  • Human-Computer Interaction
  • Computer Graphics and Computer-Aided Design
  • Software

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