"It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers

Catherine Lim; Andrew B.L. Berry; Tad Hirsch; Andrea L. Hartzler; Edward H. Wagner; Evette Ludman; James D. Ralston

doi:10.1145/2901790.2901866

"It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers

Catherine Lim, Andrew B.L. Berry, Tad Hirsch, Andrea L. Hartzler, Edward H. Wagner, Evette Ludman, James D. Ralston

Medical Social Sciences

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

77 Scopus citations

Abstract

To improve care for the growing number of older adults with multiple chronic conditions, physicians and other healthcare providers need to better understand what is most important in the lives of these patients. In a qualitative study of home visits with patients and family caregivers, we found that patients withhold information from providers when communicating about what they deem important to their health and well-being. We examine the various motivations and factors that explain communication boundaries between patients and their healthcare providers. Patients' disclosures reflected perceptions of what was pertinent to share, assumptions about the consequences of sharing, and the influence of interpersonal relationships with providers. Our findings revealed limitations of existing approaches to support patient-provider communication and identified challenges for the design of systems that honor patient needs and preferences.

Original language	English (US)
Title of host publication	DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems
Subtitle of host publication	Fuse
Publisher	Association for Computing Machinery, Inc
Pages	1172-1184
Number of pages	13
ISBN (Electronic)	9781450340311
DOIs	https://doi.org/10.1145/2901790.2901866
State	Published - Jun 4 2016
Event	11th ACM SIGCHI Conference on Designing Interactive Systems, DIS 2016 - Brisbane, Australia Duration: Jun 4 2016 → Jun 8 2016

Publication series

Name	DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse

Other

Other	11th ACM SIGCHI Conference on Designing Interactive Systems, DIS 2016
Country/Territory	Australia
City	Brisbane
Period	6/4/16 → 6/8/16

Funding

We would like to acknowledge the valuable contributions of Linda Kiel, Luesa Jordan and Zoe Bermet. This work was supported by the Agency for Healthcare Research and Quality grant R01 HS022364.

Keywords

Chronic illness
Patient self-disclosure
Patient-provider communication

ASJC Scopus subject areas

Software
Human-Computer Interaction
Computer Graphics and Computer-Aided Design

Access to Document

10.1145/2901790.2901866

Cite this

Lim, C., Berry, A. B. L., Hirsch, T., Hartzler, A. L., Wagner, E. H., Ludman, E., & Ralston, J. D. (2016). "It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers. In DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse (pp. 1172-1184). (DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse). Association for Computing Machinery, Inc. https://doi.org/10.1145/2901790.2901866

Lim, Catherine ; Berry, Andrew B.L. ; Hirsch, Tad et al. / "It just seems outside my health" : How patients with chronic conditions perceive communication boundaries with providers. DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse. Association for Computing Machinery, Inc, 2016. pp. 1172-1184 (DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse).

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title = "{"}It just seems outside my health{"}: How patients with chronic conditions perceive communication boundaries with providers",

abstract = "To improve care for the growing number of older adults with multiple chronic conditions, physicians and other healthcare providers need to better understand what is most important in the lives of these patients. In a qualitative study of home visits with patients and family caregivers, we found that patients withhold information from providers when communicating about what they deem important to their health and well-being. We examine the various motivations and factors that explain communication boundaries between patients and their healthcare providers. Patients' disclosures reflected perceptions of what was pertinent to share, assumptions about the consequences of sharing, and the influence of interpersonal relationships with providers. Our findings revealed limitations of existing approaches to support patient-provider communication and identified challenges for the design of systems that honor patient needs and preferences.",

keywords = "Chronic illness, Patient self-disclosure, Patient-provider communication",

author = "Catherine Lim and Berry, \{Andrew B.L.\} and Tad Hirsch and Hartzler, \{Andrea L.\} and Wagner, \{Edward H.\} and Evette Ludman and Ralston, \{James D.\}",

note = "Publisher Copyright: {\textcopyright} 2016 ACM.; 11th ACM SIGCHI Conference on Designing Interactive Systems, DIS 2016 ; Conference date: 04-06-2016 Through 08-06-2016",

year = "2016",

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doi = "10.1145/2901790.2901866",

language = "English (US)",

series = "DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse",

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Lim, C, Berry, ABL, Hirsch, T, Hartzler, AL, Wagner, EH, Ludman, E & Ralston, JD 2016, "It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers. in DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse. DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse, Association for Computing Machinery, Inc, pp. 1172-1184, 11th ACM SIGCHI Conference on Designing Interactive Systems, DIS 2016, Brisbane, Australia, 6/4/16. https://doi.org/10.1145/2901790.2901866

"It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers. / Lim, Catherine; Berry, Andrew B.L.; Hirsch, Tad et al.
DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse. Association for Computing Machinery, Inc, 2016. p. 1172-1184 (DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

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Lim C, Berry ABL, Hirsch T, Hartzler AL, Wagner EH, Ludman E et al. "It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers. In DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse. Association for Computing Machinery, Inc. 2016. p. 1172-1184. (DIS 2016 - Proceedings of the 2016 ACM Conference on Designing Interactive Systems: Fuse). doi: 10.1145/2901790.2901866

"It just seems outside my health": How patients with chronic conditions perceive communication boundaries with providers

Abstract

Publication series

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Funding

Keywords

ASJC Scopus subject areas

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