Item selection in self-report measures for children and adolescents with disabilities: Lessons from cognitive interviews

Linda Eddy*, Leyla Khastou, Karon F. Cook, Dagmar Amtmann

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

9 Scopus citations

Abstract

The aim of the study was to evaluate children's and adolescents' understanding of items from self-report measures. Cognitive interviews were conducted as part of a larger study on pain and fatigue in children with disabilities. A list of guiding questions was used to encourage participants to talk about words or concepts in the scale that they found difficult. The sample included 32 children and adolescents with physical disabilities. Participants had difficulty with words such as intense, severe, and anxiety. They had more difficulty with abstract ideas, such as average, than they did with more concrete ideas, such as naming a recreational or social activity. Because poor outcome measurement hinders symptom evaluation, findings support the need to put greater emphasis on the child perspective when developing and using self-report measures. Suggestions for increasing accuracy of these measures are offered for clinicians and researchers.

Original languageEnglish (US)
Pages (from-to)559-565
Number of pages7
JournalJournal of Pediatric Nursing
Volume26
Issue number6
DOIs
StatePublished - Dec 1 2011

Keywords

  • Children with disabilities
  • Cognitive interview
  • Self-report measures

ASJC Scopus subject areas

  • Pediatrics

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