TY - JOUR
T1 - Item selection in self-report measures for children and adolescents with disabilities
T2 - Lessons from cognitive interviews
AU - Eddy, Linda
AU - Khastou, Leyla
AU - Cook, Karon F.
AU - Amtmann, Dagmar
N1 - Funding Information:
Communicating Nursing Research Conference on April 18, 2008, in Garden Grove, CA. This study was funded by the National Institutes of Health Grant 5U01AR052171 to University of Washington Center on Outcomes Research in Rehabilitation and by a National Institutes of Health Reentry to Biomedical and Behavioral Health administrative supplement to Washington State University College of Nursing.
PY - 2011/12
Y1 - 2011/12
N2 - The aim of the study was to evaluate children's and adolescents' understanding of items from self-report measures. Cognitive interviews were conducted as part of a larger study on pain and fatigue in children with disabilities. A list of guiding questions was used to encourage participants to talk about words or concepts in the scale that they found difficult. The sample included 32 children and adolescents with physical disabilities. Participants had difficulty with words such as intense, severe, and anxiety. They had more difficulty with abstract ideas, such as average, than they did with more concrete ideas, such as naming a recreational or social activity. Because poor outcome measurement hinders symptom evaluation, findings support the need to put greater emphasis on the child perspective when developing and using self-report measures. Suggestions for increasing accuracy of these measures are offered for clinicians and researchers.
AB - The aim of the study was to evaluate children's and adolescents' understanding of items from self-report measures. Cognitive interviews were conducted as part of a larger study on pain and fatigue in children with disabilities. A list of guiding questions was used to encourage participants to talk about words or concepts in the scale that they found difficult. The sample included 32 children and adolescents with physical disabilities. Participants had difficulty with words such as intense, severe, and anxiety. They had more difficulty with abstract ideas, such as average, than they did with more concrete ideas, such as naming a recreational or social activity. Because poor outcome measurement hinders symptom evaluation, findings support the need to put greater emphasis on the child perspective when developing and using self-report measures. Suggestions for increasing accuracy of these measures are offered for clinicians and researchers.
KW - Children with disabilities
KW - Cognitive interview
KW - Self-report measures
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U2 - 10.1016/j.pedn.2010.07.004
DO - 10.1016/j.pedn.2010.07.004
M3 - Article
C2 - 22055376
AN - SCOPUS:82855164038
VL - 26
SP - 559
EP - 565
JO - Journal of Pediatric Nursing
JF - Journal of Pediatric Nursing
SN - 0882-5963
IS - 6
ER -