Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies

Sun Young Park; Woosuk Seo; Andrew B.L. Berry; Hyeryoung Kim; Sanya Verma; Sung Won Choi; Ayse G. Buyuktur

doi:10.1145/3313831.3376397

Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies

Sun Young Park, Woosuk Seo, Andrew B.L. Berry, Hyeryoung Kim, Sanya Verma, Sung Won Choi, Ayse G. Buyuktur

Medical Social Sciences

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

6 Scopus citations

Abstract

The diagnosis of cancer brings about significant changes in the life of a child. In addition to physical pain, pediatric patients face psychological and social challenges. At the same time, some patients also have positive experiences with and attitudes toward their illness and treatment. Drawing on 19 semi-structured interviews with pairs of pediatric cancer patients and their parental caregivers, we examined patients' perspectives on their experience of living with cancer. We identified four salient themes in patients' positive experiences: future-oriented thinking, developing strong personal bonds and relationships, gaining knowledge and life experience, and developing self-management and coping skills. Collectively, the patients' positive experiences indicate that they adapt to their new lives through an evolving process. Based on this process, we provide design implications for health technologies to support and promote positive experiences during illness and treatment.

Original language	English (US)
Title of host publication	CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
Publisher	Association for Computing Machinery
ISBN (Electronic)	9781450367080
DOIs	https://doi.org/10.1145/3313831.3376397
State	Published - Apr 21 2020
Event	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020 - Honolulu, United States Duration: Apr 25 2020 → Apr 30 2020

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings

Conference

Conference	2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020
Country/Territory	United States
City	Honolulu
Period	4/25/20 → 4/30/20

Funding

We would like to thank the child patients and their parental caregivers who participated in our study. We also appreciate Dr. Laura Sedig and other clinicians for helping with recruitment. This work was funded by NSF(#1657411) and the U-M Office of Research (UMOR).

Keywords

adaptation
cancer
health technology
pediatric patient
positive experience

ASJC Scopus subject areas

Software
Human-Computer Interaction
Computer Graphics and Computer-Aided Design

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1145/3313831.3376397

Cite this

Park, S. Y., Seo, W., Berry, A. B. L., Kim, H., Verma, S., Choi, S. W., & Buyuktur, A. G. (2020). Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies. In CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems Article 3376397 (Conference on Human Factors in Computing Systems - Proceedings). Association for Computing Machinery. https://doi.org/10.1145/3313831.3376397

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title = "Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies",

abstract = "The diagnosis of cancer brings about significant changes in the life of a child. In addition to physical pain, pediatric patients face psychological and social challenges. At the same time, some patients also have positive experiences with and attitudes toward their illness and treatment. Drawing on 19 semi-structured interviews with pairs of pediatric cancer patients and their parental caregivers, we examined patients' perspectives on their experience of living with cancer. We identified four salient themes in patients' positive experiences: future-oriented thinking, developing strong personal bonds and relationships, gaining knowledge and life experience, and developing self-management and coping skills. Collectively, the patients' positive experiences indicate that they adapt to their new lives through an evolving process. Based on this process, we provide design implications for health technologies to support and promote positive experiences during illness and treatment.",

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author = "Park, {Sun Young} and Woosuk Seo and Berry, {Andrew B.L.} and Hyeryoung Kim and Sanya Verma and Choi, {Sung Won} and Buyuktur, {Ayse G.}",

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year = "2020",

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day = "21",

doi = "10.1145/3313831.3376397",

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Park, SY, Seo, W, Berry, ABL, Kim, H, Verma, S, Choi, SW & Buyuktur, AG 2020, Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies. in CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems., 3376397, Conference on Human Factors in Computing Systems - Proceedings, Association for Computing Machinery, 2020 ACM CHI Conference on Human Factors in Computing Systems, CHI 2020, Honolulu, United States, 4/25/20. https://doi.org/10.1145/3313831.3376397

Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies. / Park, Sun Young; Seo, Woosuk; Berry, Andrew B.L. et al.
CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery, 2020. 3376397 (Conference on Human Factors in Computing Systems - Proceedings).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

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AU - Park, Sun Young

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AU - Buyuktur, Ayse G.

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Park SY, Seo W, Berry ABL, Kim H, Verma S, Choi SW et al. Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies. In CHI 2020 - Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. Association for Computing Machinery. 2020. 3376397. (Conference on Human Factors in Computing Systems - Proceedings). doi: 10.1145/3313831.3376397

Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies

Abstract

Publication series

Conference

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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