Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model

Megan A. Morrell; Tabitha R. Willis; Denisha R. Brown; Catherine A. O’Brian; Sharon L. Post; Gayle E. Woloschak; Marcelo G. Bonini; Tatjana Paunesku; Jelena Popovic; Tarneka M. Manning; Candace Henley; Jorge Girotti; Rosemarie Rogers; Carmen Velásquez; José López; Joanne Glenn; Melissa A. Simon

doi:10.1007/s10552-023-01699-7

Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model

Megan A. Morrell, Tabitha R. Willis, Denisha R. Brown, Catherine A. O’Brian, Sharon L. Post, Gayle E. Woloschak, Marcelo G. Bonini, Tatjana Paunesku, Jelena Popovic, Tarneka M. Manning, Candace Henley, Jorge Girotti, Rosemarie Rogers, Carmen Velásquez, José López, Joanne Glenn, Melissa A. Simon^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University’s Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR.

Original language	English (US)
Pages (from-to)	621-624
Number of pages	4
Journal	Cancer Causes and Control
Volume	34
Issue number	7
DOIs	https://doi.org/10.1007/s10552-023-01699-7
State	Accepted/In press - 2023

Keywords

CBPR
Collaboration
Community
Community-based participatory research
Ethics

ASJC Scopus subject areas

Oncology
Cancer Research

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1007/s10552-023-01699-7

Cite this

Morrell, M. A., Willis, T. R., Brown, D. R., O’Brian, C. A., Post, S. L., Woloschak, G. E., Bonini, M. G., Paunesku, T., Popovic, J., Manning, T. M., Henley, C., Girotti, J., Rogers, R., Velásquez, C., López, J., Glenn, J., & Simon, M. A. (Accepted/In press). Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model. Cancer Causes and Control, 34(7), 621-624. https://doi.org/10.1007/s10552-023-01699-7

@article{4227b8fa37a04332883d0a66ed132072,

title = "Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model",

abstract = "Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University{\textquoteright}s Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR.",

keywords = "CBPR, Collaboration, Community, Community-based participatory research, Ethics",

author = "Morrell, {Megan A.} and Willis, {Tabitha R.} and Brown, {Denisha R.} and O{\textquoteright}Brian, {Catherine A.} and Post, {Sharon L.} and Woloschak, {Gayle E.} and Bonini, {Marcelo G.} and Tatjana Paunesku and Jelena Popovic and Manning, {Tarneka M.} and Candace Henley and Jorge Girotti and Rosemarie Rogers and Carmen Vel{\'a}squez and Jos{\'e} L{\'o}pez and Joanne Glenn and Simon, {Melissa A.}",

note = "Funding Information: This work was supported by National Institutes of Health Grants P30CA060553, U54CA203000, U54CA202995, U54CA202997, T37MD014248, and P20CA233304. The content is solely the responsibility of the authors and does not necessarily reflect the official views of the National Institutes of Health. Publisher Copyright: {\textcopyright} 2023, The Author(s), under exclusive licence to Springer Nature Switzerland AG.",

year = "2023",

doi = "10.1007/s10552-023-01699-7",

language = "English (US)",

volume = "34",

pages = "621--624",

journal = "Cancer Causes and Control",

issn = "0957-5243",

publisher = "Springer Netherlands",

number = "7",

}

Morrell, MA, Willis, TR, Brown, DR, O’Brian, CA, Post, SL, Woloschak, GE , Bonini, MG , Paunesku, T, Popovic, J, Manning, TM, Henley, C, Girotti, J, Rogers, R, Velásquez, C, López, J, Glenn, J & Simon, MA 2023, 'Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model', Cancer Causes and Control, vol. 34, no. 7, pp. 621-624. https://doi.org/10.1007/s10552-023-01699-7

Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model. / Morrell, Megan A.; Willis, Tabitha R.; Brown, Denisha R. et al.
In: Cancer Causes and Control, Vol. 34, No. 7, 07.2023, p. 621-624.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation

T2 - the community scientist model

AU - Morrell, Megan A.

AU - Willis, Tabitha R.

AU - Brown, Denisha R.

AU - O’Brian, Catherine A.

AU - Post, Sharon L.

AU - Woloschak, Gayle E.

AU - Bonini, Marcelo G.

AU - Paunesku, Tatjana

AU - Popovic, Jelena

AU - Manning, Tarneka M.

AU - Henley, Candace

AU - Girotti, Jorge

AU - Rogers, Rosemarie

AU - Velásquez, Carmen

AU - López, José

AU - Glenn, Joanne

AU - Simon, Melissa A.

N1 - Funding Information: This work was supported by National Institutes of Health Grants P30CA060553, U54CA203000, U54CA202995, U54CA202997, T37MD014248, and P20CA233304. The content is solely the responsibility of the authors and does not necessarily reflect the official views of the National Institutes of Health. Publisher Copyright: © 2023, The Author(s), under exclusive licence to Springer Nature Switzerland AG.

PY - 2023

Y1 - 2023

N2 - Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University’s Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR.

AB - Engagement of community participation is an innovative driver of modern research. However, to benefit the communities being studied, it is imperative to continuously evaluate ethical considerations, the relationship dynamic between researchers and community members, and the responsiveness of research teams to the needs and preferences of communities. Northwestern University’s Center for Health Equity Transformation founded a community scientist program in 2018 that implemented a study using the Community-Based Participatory Research (CBPR) model. This project is an ongoing study of heavy metal exposure by geographic location in Chicago. Community scientists from various backgrounds, communities, and organizations formed an advisory panel, partnering with the cancer research team. This commentary describes lessons learned in structuring meaningful community involvement and benefit in CBPR, with a focus on three lessons learned that relate to ethics, relationships, and responsiveness. Our findings lay new groundwork for iteratively shaping best practices in CBPR.

KW - CBPR

KW - Collaboration

KW - Community

KW - Community-based participatory research

KW - Ethics

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UR - http://www.scopus.com/inward/citedby.url?scp=85153237717&partnerID=8YFLogxK

U2 - 10.1007/s10552-023-01699-7

DO - 10.1007/s10552-023-01699-7

M3 - Article

C2 - 37081154

AN - SCOPUS:85153237717

SN - 0957-5243

VL - 34

SP - 621

EP - 624

JO - Cancer Causes and Control

JF - Cancer Causes and Control

IS - 7

ER -

Lessons learned in the practice of community-based participatory research with community partner collaboration in study design and implementation: the community scientist model

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

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