Lung transplant or bust: Patients' recommendations for ideal lung transplant education

Lashara Davis*, Eric Ryszkiewicz, Emily Schenk, John Peipert, Claire Lasee, Carol Miller, Greg Richardson, Gene Ridolfi, Elbert Trulock, G. Patterson, Amy Waterman

*Corresponding author for this work

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Context-Effective lung transplant education helps ensure informed decision making by patients and better transplant outcomes.Objective-To understand the educational needs and experiences of lung transplant patients.Design-Mixed- method study employing focus groups and patient surveys.Setting-Barnes-Jewish Hospital in St Louis, Missouri.Patients-50 adult lung transplant patients: 23 pretransplant and 27 posttransplant.Main Outcome Measures-Patients' interest in receiving specific transplant information, the stage in the transplant process during which they wanted to receive the education, and the preferred format for presenting the information.Results-Patients most wanted information about how to sustain their transplant (72%), when to contact their coordinator immediately (56%), transplant benefits (56%), immunosuppressants (54%), and possible out-of-pocket expenses (52%). Patients also wanted comprehensive information early in the transplant process and a review of a subset of topics immediately before transplant (time between getting the call that a potential donor has been found and getting the transplant). Patients reported that they would use Internet resources (74%) and converse with transplant professionals (68%) and recipients (62%) most often.Discussion-Lung transplant patients are focused on learning how to get a transplant and ensuring its success afterwards. A comprehensive overview of the evaluation, surgery, and recovery process at evaluation onset with a review of content about medications, pain management, and transplant recovery repeated immediately before surgery is ideal.

Original languageEnglish (US)
Pages (from-to)132-141
Number of pages10
JournalProgress in Transplantation
Volume24
Issue number2
DOIs
StatePublished - Jun 1 2014

Fingerprint

Transplants
Education
Lung
Pain Management
Immunosuppressive Agents
Health Expenditures
Focus Groups
Internet
Decision Making
Outcome Assessment (Health Care)
Tissue Donors
Learning

ASJC Scopus subject areas

  • Transplantation

Cite this

Davis, L., Ryszkiewicz, E., Schenk, E., Peipert, J., Lasee, C., Miller, C., ... Waterman, A. (2014). Lung transplant or bust: Patients' recommendations for ideal lung transplant education. Progress in Transplantation, 24(2), 132-141. https://doi.org/10.7182/pit2014432
Davis, Lashara ; Ryszkiewicz, Eric ; Schenk, Emily ; Peipert, John ; Lasee, Claire ; Miller, Carol ; Richardson, Greg ; Ridolfi, Gene ; Trulock, Elbert ; Patterson, G. ; Waterman, Amy. / Lung transplant or bust : Patients' recommendations for ideal lung transplant education. In: Progress in Transplantation. 2014 ; Vol. 24, No. 2. pp. 132-141.
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Davis, L, Ryszkiewicz, E, Schenk, E, Peipert, J, Lasee, C, Miller, C, Richardson, G, Ridolfi, G, Trulock, E, Patterson, G & Waterman, A 2014, 'Lung transplant or bust: Patients' recommendations for ideal lung transplant education', Progress in Transplantation, vol. 24, no. 2, pp. 132-141. https://doi.org/10.7182/pit2014432

Lung transplant or bust : Patients' recommendations for ideal lung transplant education. / Davis, Lashara; Ryszkiewicz, Eric; Schenk, Emily; Peipert, John; Lasee, Claire; Miller, Carol; Richardson, Greg; Ridolfi, Gene; Trulock, Elbert; Patterson, G.; Waterman, Amy.

In: Progress in Transplantation, Vol. 24, No. 2, 01.06.2014, p. 132-141.

Research output: Contribution to journalArticle

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AU - Davis, Lashara

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AU - Miller, Carol

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AU - Trulock, Elbert

AU - Patterson, G.

AU - Waterman, Amy

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