Measuring participation: The patient-reported outcomes measurement information system experience

Rita K. Bode, Elizabeth A Hahn, Robert Devellis, David Cella

Research output: Contribution to journalArticle

22 Citations (Scopus)

Abstract

Objectives: To describe the lessons learned in the initial development of Patient-Reported Outcomes Measurement Information System social function item banks. Design: Development and testing of 2 item pools within a general population to create item banks that measure ability to participate and satisfaction with participation in social activities. Setting: Administration via the Internet. Participants: General population members (N=956) of a national polling organization registry participated; data for 768 and 778 participants were used in the analysis. Interventions: Not applicable. Main Outcome Measures: Measures of ability to participate and satisfaction with participation in social activities. Results: Fifty-six items measuring the ability to participate were essentially unidimensional but did not fit an item response theory model. As a result, item banks were not developed for these items. Of the 56 items measuring satisfaction with participation, 14 items measuring social roles and 12 items measuring discretionary activities were unidimensional and met item response theory model assumptions. Two 7-item short forms were also developed. Conclusions: Four lessons, mostly concerning item content, were learned in the development of banks measuring social function. These lessons led to item revisions that are being tested in subsequent studies.

Original languageEnglish (US)
JournalArchives of physical medicine and rehabilitation
Volume91
Issue number9 SUPPL.
DOIs
StatePublished - Sep 1 2010

Fingerprint

Aptitude
Information Systems
Internet
Population
Registries
Outcome Assessment (Health Care)
Organizations
Patient Reported Outcome Measures

Keywords

  • Quality of life
  • Rehabilitation

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

Cite this

@article{0d8b285e40374dfb9a24173f27e7c8c4,
title = "Measuring participation: The patient-reported outcomes measurement information system experience",
abstract = "Objectives: To describe the lessons learned in the initial development of Patient-Reported Outcomes Measurement Information System social function item banks. Design: Development and testing of 2 item pools within a general population to create item banks that measure ability to participate and satisfaction with participation in social activities. Setting: Administration via the Internet. Participants: General population members (N=956) of a national polling organization registry participated; data for 768 and 778 participants were used in the analysis. Interventions: Not applicable. Main Outcome Measures: Measures of ability to participate and satisfaction with participation in social activities. Results: Fifty-six items measuring the ability to participate were essentially unidimensional but did not fit an item response theory model. As a result, item banks were not developed for these items. Of the 56 items measuring satisfaction with participation, 14 items measuring social roles and 12 items measuring discretionary activities were unidimensional and met item response theory model assumptions. Two 7-item short forms were also developed. Conclusions: Four lessons, mostly concerning item content, were learned in the development of banks measuring social function. These lessons led to item revisions that are being tested in subsequent studies.",
keywords = "Quality of life, Rehabilitation",
author = "Bode, {Rita K.} and Hahn, {Elizabeth A} and Robert Devellis and David Cella",
year = "2010",
month = "9",
day = "1",
doi = "10.1016/j.apmr.2009.10.035",
language = "English (US)",
volume = "91",
journal = "Archives of Physical Medicine and Rehabilitation",
issn = "0003-9993",
publisher = "W.B. Saunders Ltd",
number = "9 SUPPL.",

}

Measuring participation : The patient-reported outcomes measurement information system experience. / Bode, Rita K.; Hahn, Elizabeth A; Devellis, Robert; Cella, David.

In: Archives of physical medicine and rehabilitation, Vol. 91, No. 9 SUPPL., 01.09.2010.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Measuring participation

T2 - The patient-reported outcomes measurement information system experience

AU - Bode, Rita K.

AU - Hahn, Elizabeth A

AU - Devellis, Robert

AU - Cella, David

PY - 2010/9/1

Y1 - 2010/9/1

N2 - Objectives: To describe the lessons learned in the initial development of Patient-Reported Outcomes Measurement Information System social function item banks. Design: Development and testing of 2 item pools within a general population to create item banks that measure ability to participate and satisfaction with participation in social activities. Setting: Administration via the Internet. Participants: General population members (N=956) of a national polling organization registry participated; data for 768 and 778 participants were used in the analysis. Interventions: Not applicable. Main Outcome Measures: Measures of ability to participate and satisfaction with participation in social activities. Results: Fifty-six items measuring the ability to participate were essentially unidimensional but did not fit an item response theory model. As a result, item banks were not developed for these items. Of the 56 items measuring satisfaction with participation, 14 items measuring social roles and 12 items measuring discretionary activities were unidimensional and met item response theory model assumptions. Two 7-item short forms were also developed. Conclusions: Four lessons, mostly concerning item content, were learned in the development of banks measuring social function. These lessons led to item revisions that are being tested in subsequent studies.

AB - Objectives: To describe the lessons learned in the initial development of Patient-Reported Outcomes Measurement Information System social function item banks. Design: Development and testing of 2 item pools within a general population to create item banks that measure ability to participate and satisfaction with participation in social activities. Setting: Administration via the Internet. Participants: General population members (N=956) of a national polling organization registry participated; data for 768 and 778 participants were used in the analysis. Interventions: Not applicable. Main Outcome Measures: Measures of ability to participate and satisfaction with participation in social activities. Results: Fifty-six items measuring the ability to participate were essentially unidimensional but did not fit an item response theory model. As a result, item banks were not developed for these items. Of the 56 items measuring satisfaction with participation, 14 items measuring social roles and 12 items measuring discretionary activities were unidimensional and met item response theory model assumptions. Two 7-item short forms were also developed. Conclusions: Four lessons, mostly concerning item content, were learned in the development of banks measuring social function. These lessons led to item revisions that are being tested in subsequent studies.

KW - Quality of life

KW - Rehabilitation

UR - http://www.scopus.com/inward/record.url?scp=77956252230&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=77956252230&partnerID=8YFLogxK

U2 - 10.1016/j.apmr.2009.10.035

DO - 10.1016/j.apmr.2009.10.035

M3 - Article

C2 - 20801282

AN - SCOPUS:77956252230

VL - 91

JO - Archives of Physical Medicine and Rehabilitation

JF - Archives of Physical Medicine and Rehabilitation

SN - 0003-9993

IS - 9 SUPPL.

ER -