Moving toward a shared process: The impact of parent experiences on perinatal palliative care

Susan L. Hasegawa, Jessica T. Fry*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

Perinatal palliative care programs seek to support parents expecting a baby diagnosed with a serious medical condition. Clinicians have increasingly recognized the importance of parental perspectives on the medical care mothers and their fetuses and live-born children receive, especially regarding factors influencing individual choices and knowledge of the medical community. We describe, using literature on trisomy 13 and trisomy 18, how information shared between parents and providers can improve perinatal counseling and family support.

Original languageEnglish (US)
Pages (from-to)95-100
Number of pages6
JournalSeminars in Perinatology
Volume41
Issue number2
DOIs
StatePublished - Mar 1 2017

Keywords

  • Decision Making
  • Neonatal
  • Palliative care
  • Parent experiences
  • Perinatal
  • Trisomy 13
  • Trisomy 18

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Obstetrics and Gynecology

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