TY - JOUR
T1 - Myautsomefamilylife
T2 - Analyzing parents of children with developmental disabilities on YouTube
AU - Borgos-Rodriguez, Katya
AU - Ringland, Kathryn E.
AU - Piper, Anne Marie
N1 - Funding Information:
We thank all of the content creators who participated in our interviews as well as those whose data we analyzed on YouTube. This work was funded in part by NSF grant IIS-1522921. Kathryn Ringland is supported by the National Institute of Mental Health (T32MH115882). The content is solely the responsibility of the authors and does not necessarily represent the official views of the funding bodies.
PY - 2019/11
Y1 - 2019/11
N2 - While parents of young children regularly make decisions about sharing content about their child or family online, we know less about how they create, produce, and share video-based content of children with stigmatizing experiences1. Through an analysis of publicly available content on YouTube, supplemented with semi-structured interviews, we report on the ways in which parents of children with developmental disabilities produce, share, and interact with others through videos of their children’s experiences. Our analysis finds that parents disclose child information on YouTube to build authenticity, connect with others, advocate for social change, and justify monetization and child involvement. We discuss tensions between parents’ practices and the ethical complexities of sharing and studying parent-generated content featuring children with disabilities.
AB - While parents of young children regularly make decisions about sharing content about their child or family online, we know less about how they create, produce, and share video-based content of children with stigmatizing experiences1. Through an analysis of publicly available content on YouTube, supplemented with semi-structured interviews, we report on the ways in which parents of children with developmental disabilities produce, share, and interact with others through videos of their children’s experiences. Our analysis finds that parents disclose child information on YouTube to build authenticity, connect with others, advocate for social change, and justify monetization and child involvement. We discuss tensions between parents’ practices and the ethical complexities of sharing and studying parent-generated content featuring children with disabilities.
KW - Children
KW - Developmental disabilities
KW - Disclosure
KW - Parents
KW - YouTube
UR - http://www.scopus.com/inward/record.url?scp=85075069803&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85075069803&partnerID=8YFLogxK
U2 - 10.1145/3359196
DO - 10.1145/3359196
M3 - Editorial
AN - SCOPUS:85075069803
VL - 3
JO - Proceedings of the ACM on Human-Computer Interaction
JF - Proceedings of the ACM on Human-Computer Interaction
SN - 2573-0142
IS - CSCW
M1 - 94
ER -