Myautsomefamilylife: Analyzing parents of children with developmental disabilities on YouTube

Katya Borgos-Rodriguez, Kathryn E. Ringland, Anne Marie Piper

Research output: Contribution to journalEditorialpeer-review

12 Scopus citations


While parents of young children regularly make decisions about sharing content about their child or family online, we know less about how they create, produce, and share video-based content of children with stigmatizing experiences1. Through an analysis of publicly available content on YouTube, supplemented with semi-structured interviews, we report on the ways in which parents of children with developmental disabilities produce, share, and interact with others through videos of their children’s experiences. Our analysis finds that parents disclose child information on YouTube to build authenticity, connect with others, advocate for social change, and justify monetization and child involvement. We discuss tensions between parents’ practices and the ethical complexities of sharing and studying parent-generated content featuring children with disabilities.

Original languageEnglish (US)
Article number94
JournalProceedings of the ACM on Human-Computer Interaction
Issue numberCSCW
StatePublished - Nov 2019


  • Children
  • Developmental disabilities
  • Disclosure
  • Parents
  • YouTube

ASJC Scopus subject areas

  • Social Sciences (miscellaneous)
  • Human-Computer Interaction
  • Computer Networks and Communications


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