Neuro-QOL and the NIH toolbox: Implications for epilepsy

Research output: Contribution to journalReview articlepeer-review

21 Scopus citations


The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.

Original languageEnglish (US)
Pages (from-to)533-540
Number of pages8
Issue number5
StatePublished - Sep 2010


  • behavioral function
  • epilepsy
  • health-related quality of life
  • measurement
  • neurological function
  • patient reported outcomes
  • quality of life

ASJC Scopus subject areas

  • Pharmacology (medical)


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