Optimizing health information technologies for symptom management in cancer patients and survivors: Usability evaluation

Emily G. Lattie; Michael Bass; Sofia F. Garcia; Siobhan M. Phillips; Patricia I. Moreno; Ann Marie Flores; J. D. Smith; Denise Scholtens; Cynthia Barnard; Frank J. Penedo; David Cella; Betina Yanez

doi:10.2196/18412

Optimizing health information technologies for symptom management in cancer patients and survivors: Usability evaluation

Emily G. Lattie^*, Michael Bass, Sofia F. Garcia, Siobhan M. Phillips, Patricia I. Moreno, Ann Marie Flores, J. D. Smith, Denise Scholtens, Cynthia Barnard, Frank J. Penedo, David Cella, Betina Yanez

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

Background: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. Objective: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. Methods: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. Results: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. Conclusions: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.

Original language	English (US)
Article number	e18412
Journal	JMIR Formative Research
Volume	4
Issue number	9
DOIs	https://doi.org/10.2196/18412
State	Published - Sep 2020

Keywords

Cancer survivorship
Digital health
EHealth
Patient-reported outcomes
Supportive care
Symptom management

ASJC Scopus subject areas

Health Informatics
Medicine (miscellaneous)

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.2196/18412

Cite this

Lattie, E. G., Bass, M., Garcia, S. F., Phillips, S. M., Moreno, P. I., Flores, A. M., Smith, J. D., Scholtens, D., Barnard, C., Penedo, F. J., Cella, D., & Yanez, B. (2020). Optimizing health information technologies for symptom management in cancer patients and survivors: Usability evaluation. JMIR Formative Research, 4(9), Article e18412. https://doi.org/10.2196/18412

@article{65f500ace30b46448e064d3979980255,

title = "Optimizing health information technologies for symptom management in cancer patients and survivors: Usability evaluation",

abstract = "Background: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. Objective: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. Methods: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. Results: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. Conclusions: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.",

keywords = "Cancer survivorship, Digital health, EHealth, Patient-reported outcomes, Supportive care, Symptom management",

author = "Lattie, {Emily G.} and Michael Bass and Garcia, {Sofia F.} and Phillips, {Siobhan M.} and Moreno, {Patricia I.} and Flores, {Ann Marie} and Smith, {J. D.} and Denise Scholtens and Cynthia Barnard and Penedo, {Frank J.} and David Cella and Betina Yanez",

note = "Publisher Copyright: {\textcopyright} Emily G Lattie, Michael Bass, Sofia F Garcia, Siobhan M Phillips, Patricia I Moreno, Ann Marie Flores, JD Smith, Denise Scholtens, Cynthia Barnard, Frank J Penedo, David Cella, Betina Yanez. Originally published in JMIR Formative Research (http://formative.jmir.org), 21.09.2020. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.",

year = "2020",

month = sep,

doi = "10.2196/18412",

language = "English (US)",

volume = "4",

journal = "JMIR Formative Research",

issn = "2561-326X",

publisher = "JMIR Publications Inc.",

number = "9",

}

TY - JOUR

T1 - Optimizing health information technologies for symptom management in cancer patients and survivors

T2 - Usability evaluation

AU - Lattie, Emily G.

AU - Bass, Michael

AU - Garcia, Sofia F.

AU - Phillips, Siobhan M.

AU - Moreno, Patricia I.

AU - Flores, Ann Marie

AU - Smith, J. D.

AU - Scholtens, Denise

AU - Barnard, Cynthia

AU - Penedo, Frank J.

AU - Cella, David

AU - Yanez, Betina

N1 - Publisher Copyright: © Emily G Lattie, Michael Bass, Sofia F Garcia, Siobhan M Phillips, Patricia I Moreno, Ann Marie Flores, JD Smith, Denise Scholtens, Cynthia Barnard, Frank J Penedo, David Cella, Betina Yanez. Originally published in JMIR Formative Research (http://formative.jmir.org), 21.09.2020. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.

PY - 2020/9

Y1 - 2020/9

N2 - Background: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. Objective: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. Methods: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. Results: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. Conclusions: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.

AB - Background: Unmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. Objective: This paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. Methods: A web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. Results: Ten cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. Conclusions: Cancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.

KW - Cancer survivorship

KW - Digital health

KW - EHealth

KW - Patient-reported outcomes

KW - Supportive care

KW - Symptom management

UR - http://www.scopus.com/inward/record.url?scp=85097027288&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85097027288&partnerID=8YFLogxK

U2 - 10.2196/18412

DO - 10.2196/18412

M3 - Article

C2 - 32955450

AN - SCOPUS:85097027288

SN - 2561-326X

VL - 4

JO - JMIR Formative Research

JF - JMIR Formative Research

IS - 9

M1 - e18412

ER -

Optimizing health information technologies for symptom management in cancer patients and survivors: Usability evaluation

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

Other files and links

Fingerprint

Cite this