TY - JOUR
T1 - Optimizing Recruitment of Black Adolescents into Behavioral Research
T2 - A Multi-Center Study
AU - Ellis, Deborah A.
AU - Rhind, Jillian
AU - Carcone, April Idalski
AU - Evans, Meredyth
AU - Weissberg-Benchell, Jill
AU - Buggs-Saxton, Colleen
AU - Boucher-Berry, Claudia
AU - Miller, Jennifer L.
AU - Al Wazeer, Mouhammad
AU - Drossos, Tina
AU - Dekelbab, Bassem
N1 - Publisher Copyright:
© 2021 Oxford University Press. All rights reserved.
PY - 2021/7/1
Y1 - 2021/7/1
N2 - Adolescents of color are underrepresented in behavioral health research. Study aims were to quantify the amount and types of outreach effort needed to recruit young Black adolescents with type 1 diabetes and their primary caregiver into a clinical trial evaluating a parenting intervention and to determine if degree of recruitment difficulty was related to demographic, diabetes-related, or family characteristics. Methods Data were drawn from a multi-center clinical trial. Participants (N 155) were recruited from seven pediatric diabetes clinics. Contact log data were used to quantify both number/type of contacts prior to study enrollment as well as length of time to enrollment. Families were coded as having expedited recruitment (ER) or prolonged recruitment (PR). Baseline study data were used to compare ER and PR families on sociodemographic factors, adolescent diabetes management and health status and family characteristics such as household organization and family conflict. Results Mean length of time to recruit was 6.6 months and mean number of recruitment contacts was 10.3. Thirty-nine percent of the sample were characterized as PR. These families required even higher levels of effort (mean of 9.9 months to recruit and 15.4 contacts). There were no significant between-group differences on any baseline variable for ER and PR families, with the exception of family income. Conclusions Researchers need to make persistent efforts in order to successfully enroll adolescents of color and their caregivers into clinical trials. Social determinants of health such as family resources may differentiate families with prolonged recruitment within such samples.
AB - Adolescents of color are underrepresented in behavioral health research. Study aims were to quantify the amount and types of outreach effort needed to recruit young Black adolescents with type 1 diabetes and their primary caregiver into a clinical trial evaluating a parenting intervention and to determine if degree of recruitment difficulty was related to demographic, diabetes-related, or family characteristics. Methods Data were drawn from a multi-center clinical trial. Participants (N 155) were recruited from seven pediatric diabetes clinics. Contact log data were used to quantify both number/type of contacts prior to study enrollment as well as length of time to enrollment. Families were coded as having expedited recruitment (ER) or prolonged recruitment (PR). Baseline study data were used to compare ER and PR families on sociodemographic factors, adolescent diabetes management and health status and family characteristics such as household organization and family conflict. Results Mean length of time to recruit was 6.6 months and mean number of recruitment contacts was 10.3. Thirty-nine percent of the sample were characterized as PR. These families required even higher levels of effort (mean of 9.9 months to recruit and 15.4 contacts). There were no significant between-group differences on any baseline variable for ER and PR families, with the exception of family income. Conclusions Researchers need to make persistent efforts in order to successfully enroll adolescents of color and their caregivers into clinical trials. Social determinants of health such as family resources may differentiate families with prolonged recruitment within such samples.
KW - adolescents
KW - diabetes
KW - race/ethnicity
KW - research design and methodology
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U2 - 10.1093/jpepsy/jsab008
DO - 10.1093/jpepsy/jsab008
M3 - Article
C2 - 33570144
AN - SCOPUS:85112081026
SN - 0146-8693
VL - 46
SP - 611
EP - 620
JO - Journal of pediatric psychology
JF - Journal of pediatric psychology
IS - 6
ER -