Optimizing surgical treatment of internationally adopted children with cleft lip and/or palate: Understanding the family experience

Maren E. Shipe, Todd C. Edwards, Kelly N. Evans, Carolyn C. Schook, Dawn Leavitt, Ashley Peter, Babette S. Saltzman, Julian K. Davies, Raymond Tse*

*Corresponding author for this work

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Objective: To understand the experience of families with children undergoing cleft surgery following adoption from a country outside the United States. To identify factors, including the timing of surgery, that influence family function throughout the surgical experience. Design: Semistructured qualitative interviews were conducted with parents of internationally adopted children postrepair of cleft lip and/or cleft palate and coded by a multidisciplinary study team. Mixed methods were used to contextualize themes derived from the parent interviews. Results: Twenty parent interviews were conducted, and four core themes were identified: (1) parental anxieties prior to surgery, (2) considerations for the timing of surgery, (3) impact of the surgical experience on the child and family, and (4) modifiable sociocontextual factors. Parents considered a strong child bond with at least one parent and the ability of the child to communicate basic needs to be important before undergoing surgery. In retrospect, parents generally felt that the surgical experience did not have a negative impact on their child or their families and that the surgical experience may have even facilitated bonding and attachment with their child. Acceleration of family bonding was expressed more often by parents of children who were adopted at older than 2 years. Conclusions: In our study, parents reported that cleft surgery soon after international adoption did not appear to impair child bonding or adjustment. Specific family and provider factors that could optimize the experience for families were identified.

Original languageEnglish (US)
Pages (from-to)444-452
Number of pages9
JournalCleft Palate-Craniofacial Journal
Volume53
Issue number4
DOIs
StatePublished - Jul 1 2016

Fingerprint

Cleft Lip
Cleft Palate
Parents
Therapeutics
Interviews
Social Adjustment
Aptitude
Anxiety

Keywords

  • Cleft lip and palate
  • International adoption
  • Mixed methods
  • Qualitative methodology
  • Surgery

ASJC Scopus subject areas

  • Oral Surgery
  • Otorhinolaryngology

Cite this

Shipe, Maren E. ; Edwards, Todd C. ; Evans, Kelly N. ; Schook, Carolyn C. ; Leavitt, Dawn ; Peter, Ashley ; Saltzman, Babette S. ; Davies, Julian K. ; Tse, Raymond. / Optimizing surgical treatment of internationally adopted children with cleft lip and/or palate : Understanding the family experience. In: Cleft Palate-Craniofacial Journal. 2016 ; Vol. 53, No. 4. pp. 444-452.
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Optimizing surgical treatment of internationally adopted children with cleft lip and/or palate : Understanding the family experience. / Shipe, Maren E.; Edwards, Todd C.; Evans, Kelly N.; Schook, Carolyn C.; Leavitt, Dawn; Peter, Ashley; Saltzman, Babette S.; Davies, Julian K.; Tse, Raymond.

In: Cleft Palate-Craniofacial Journal, Vol. 53, No. 4, 01.07.2016, p. 444-452.

Research output: Contribution to journalArticle

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AU - Evans, Kelly N.

AU - Schook, Carolyn C.

AU - Leavitt, Dawn

AU - Peter, Ashley

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AU - Davies, Julian K.

AU - Tse, Raymond

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