Parents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research

Brian Mustanski*, Kathryn Rose Macapagal, Matthew Thomann, Brian Feinstein, Michael Newcomb, Darnell Motley, Celia B. Fisher

*Corresponding author for this work

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Research on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50% known/presumed heterosexual; 50% sexual minority) to understand their views of research risks and benefits and parental permission regarding their son’s involvement in a hypothetical PrEP adherence trial. Parents identified several health and educational benefits of the study and expressed that waiving parental permission would overcome barriers to accessing PrEP, particularly for youth who may benefit most. Among their concerns were medication non-adherence and risk compensation. Parents provided suggestions to facilitate informed, rational, and voluntary participation decisions and protect youth’s safety if parental permission was waived. These findings can inform ways to increase parental trust in PrEP research and create adequate protections for adolescent participants.

Original languageEnglish (US)
Pages (from-to)1923-1935
Number of pages13
JournalArchives of Sexual Behavior
Volume47
Issue number7
DOIs
StatePublished - Oct 1 2018

Fingerprint

Parents
HIV
Research
Medication Adherence
Heterosexuality
Insurance Benefits
Nuclear Family
Boys
AIDS/HIV
Pre-Exposure Prophylaxis
Interviews
Safety
Permission

Keywords

  • Adolescents
  • HIV prevention
  • Men who have sex with men
  • Parents
  • Pre-exposure prophylaxis

ASJC Scopus subject areas

  • Arts and Humanities (miscellaneous)
  • Psychology(all)

Cite this

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title = "Parents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research",
abstract = "Research on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50{\%} known/presumed heterosexual; 50{\%} sexual minority) to understand their views of research risks and benefits and parental permission regarding their son’s involvement in a hypothetical PrEP adherence trial. Parents identified several health and educational benefits of the study and expressed that waiving parental permission would overcome barriers to accessing PrEP, particularly for youth who may benefit most. Among their concerns were medication non-adherence and risk compensation. Parents provided suggestions to facilitate informed, rational, and voluntary participation decisions and protect youth’s safety if parental permission was waived. These findings can inform ways to increase parental trust in PrEP research and create adequate protections for adolescent participants.",
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Parents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research. / Mustanski, Brian; Macapagal, Kathryn Rose; Thomann, Matthew; Feinstein, Brian; Newcomb, Michael; Motley, Darnell; Fisher, Celia B.

In: Archives of Sexual Behavior, Vol. 47, No. 7, 01.10.2018, p. 1923-1935.

Research output: Contribution to journalArticle

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