Participation: A comparative analysis of multiple rehabilitation stakeholders' perspectives

Susan Magasi*, Joy Hammel, Allen Heinemann, Gale Whiteneck, Jennifer Bogner

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

48 Scopus citations

Abstract

Objective: To examine how participation is conceptualized by different rehabilitation stakeholder groups. Design: Qualitative case study design. Subjects: A total of 148 participants from different stakeholder groups in 2 US states and the District of Columbia. Stakeholders included people with disabilities (n=63), caregivers (n=28), rehabilitation professionals (n=32), funders (n=10), and policy makers (n=15). Methods: Eighteen focus groups were conducted to examine what participation means, how it is conceptualized, and the barriers to realizing full participation. Focus groups were transcribed verbatim; transcripts were analyzed using a constructivist grounded theory approach. Results: Stakeholders agreed on 3 primary domains of participation: (i) productivity and economic participation; (ii) social participation and relationships; and (iii) leisure/recreational participation. Participation within each domain was characterized by its diversity, individuality and environmental influences. Differences emerged in the emphasis stakeholders placed on the relevance of the participation domains in the lives of people with disabilities. Stakeholders' emphasis was influenced by their roles within the rehabilitation process and created distinct needs for participation outcome measures. Conclusion: While there was agreement about what constitutes participation, stakeholders emphasized different aspects of participation based on their positions in the rehabilitation process. Recommendations are offered for integrating study findings into the development of new participation measures.

Original languageEnglish (US)
Pages (from-to)936-944
Number of pages9
JournalJournal of Rehabilitation Medicine
Volume41
Issue number11
DOIs
StatePublished - Oct 2009

Keywords

  • Caregivers
  • Community participation
  • Disabled persons
  • Healthcare providers
  • Outcome assessment
  • Policy makers
  • Qualitative research
  • Rehabilitation

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

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