Patient and healthcare provider views on a patient-reported outcomes portal

Robert M. Cronin*, Douglas Conway, David Condon, Rebecca N. Jerome, Daniel W. Byrne, Paul A. Harris

*Corresponding author for this work

Research output: Contribution to journalArticle

10 Scopus citations

Abstract

Background: Over the past decade, public interest in managing health-related information for personal understanding and self-improvement has rapidly expanded. This study explored aspects of how patient-provided health information could be obtained through an electronic portal and presented to inform and engage patients while also providing information for healthcare providers. Methods: We invited participants using ResearchMatch from 2 cohorts: (1) self-reported healthy volunteers (no medical conditions) and (2) individuals with a self-reported diagnosis of anxiety and/or depression. Participants used a secure web application (dashboard) to complete the PROMISVR domain survey(s) and then complete a feedback survey. A community engagement studio with 5 healthcare providers assessed perspectives on the feasibility and features of a portal to collect and display patient provided health information. We used bivariate analyses and regression analyses to determine differences between cohorts. Results: A total of 480 participants completed the study (239 healthy, 241 anxiety and/or depression). While participants from the tw2o cohorts had significantly different PROMIS scores (p<.05), both cohorts welcomed the concept of a patient-centric dashboard, saw value in sharing results with their healthcare provider, and wanted to view results over time. However, factors needing consideration before widespread use included personalization for the patient and their health issues, integration with existing information (eg electronic health records), and integration into clinician workflow. Conclusions: Our findings demonstrated a strong desire among healthy people, patients with chronic diseases, and healthcare providers for a self-assessment portal that can collect patient-reported outcome metrics and deliver personalized feedback.

Original languageEnglish (US)
Pages (from-to)1470-1480
Number of pages11
JournalJournal of the American Medical Informatics Association
Volume25
Issue number11
DOIs
StatePublished - Nov 1 2018

Keywords

  • PROMIS
  • Patient engagement
  • Patient generated health data
  • Patient portal
  • Patient-reported outcomes
  • Qualitative research

ASJC Scopus subject areas

  • Health Informatics

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  • Cite this

    Cronin, R. M., Conway, D., Condon, D., Jerome, R. N., Byrne, D. W., & Harris, P. A. (2018). Patient and healthcare provider views on a patient-reported outcomes portal. Journal of the American Medical Informatics Association, 25(11), 1470-1480. https://doi.org/10.1093/jamia/ocy111