Patient, Caregiver, and Physician Work in Heart Failure Disease Management: A Qualitative Study of Issues That Undermine Wellness

Steven A. Farmer*, Susan Magasi, Phoebe Block, Megan J. Whelen, Luke O. Hansen, Robert O. Bonow, Philip Schmidt, Ami Shah, Kathleen L. Grady

*Corresponding author for this work

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Objective To identify factors underlying heart failure hospitalization. Methods Between January 1, 2012, and May 31, 2012, we combined medical record reviews and cross-sectional qualitative interviews of multiple patients with heart failure, their clinicians, and their caregivers from a large academic medical center in the Midwestern United States. The interview data were analyzed using a 3-step grounded theory–informed process and constant comparative methods. Qualitative data were compared and contrasted with results from the medical record review. Results Patient nonadherence to the care plan was the most important contributor to hospital admission; however, reasons for nonadherence were complex and multifactorial. The data highlight the importance of patient education for the purposes of condition management, timeliness of care, and effective communication between providers and patients. Conclusion To improve the consistency and quality of care for patients with heart failure, more effective relationships among patients, providers, and caregivers are needed. Providers must be pragmatic when educating patients and their caregivers about heart failure, its treatment, and its prognosis.

Original languageEnglish (US)
Pages (from-to)1056-1065
Number of pages10
JournalMayo Clinic Proceedings
Volume91
Issue number8
DOIs
StatePublished - Aug 1 2016

Fingerprint

Disease Management
Caregivers
Heart Diseases
Heart Failure
Physicians
Medical Records
Midwestern United States
Interviews
Quality of Health Care
Patient Education
Patient Compliance
Hospitalization
Communication
Therapeutics

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Farmer, Steven A. ; Magasi, Susan ; Block, Phoebe ; Whelen, Megan J. ; Hansen, Luke O. ; Bonow, Robert O. ; Schmidt, Philip ; Shah, Ami ; Grady, Kathleen L. / Patient, Caregiver, and Physician Work in Heart Failure Disease Management : A Qualitative Study of Issues That Undermine Wellness. In: Mayo Clinic Proceedings. 2016 ; Vol. 91, No. 8. pp. 1056-1065.
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Patient, Caregiver, and Physician Work in Heart Failure Disease Management : A Qualitative Study of Issues That Undermine Wellness. / Farmer, Steven A.; Magasi, Susan; Block, Phoebe; Whelen, Megan J.; Hansen, Luke O.; Bonow, Robert O.; Schmidt, Philip; Shah, Ami; Grady, Kathleen L.

In: Mayo Clinic Proceedings, Vol. 91, No. 8, 01.08.2016, p. 1056-1065.

Research output: Contribution to journalArticle

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