Patient-Centered Outcomes for Skin Cancer Management: Utilization of a Patient Delphi Process to Identify Important Treatment Themes

Todd V. Cartee*, Murad Alam, Eric S. Armbrecht, Anit Behera, Naomi Lawrence, Jeremy S. Bordeaux, Christian L. Baum, Anthony Rossi, Ian A. Maher

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

BACKGROUND Patient-reported outcomes are critical to research directed at maximizing patient benefit. The outcomes patients consider most relevant in the treatment of skin cancer have not been directly investigated.OBJECTIVETo develop a ranked list of outcomes deemed most important by patients with skin cancer through a proctored Delphi process.METHODSTwenty-one patients with a history of skin cancer volunteered to participate in the patient summit. The patient members participated in a guided discussion to generate a long list of potentially relevant outcomes. The list was then condensed and ranked through 2 rounds of a proctored Delphi process.RESULTSPatients were diverse in their skin cancer histories and complexities, ages, and states of residence. Twelve themes were rated as highly important by 70% or more of participants. Most of these themes related to patient education and the collaborative nature of the physician-patient relationship. Fear of recurrence and cosmetic outcome were also highly rated. Limitations include a preponderance of older patients and patients from the midwest and northeast.CONCLUSIONPatients with skin cancer overwhelmingly prioritize a shared decision-making process, in which they are actively engaged and value detailed education regarding their disease. This should inform future research directed at skin cancer treatment and current physician-patient interactions.

Original languageEnglish (US)
Pages (from-to)246-253
Number of pages8
JournalDermatologic Surgery
Volume45
Issue number2
DOIs
StatePublished - Feb 1 2019

ASJC Scopus subject areas

  • Surgery
  • Dermatology

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