Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R. Opotowsky; Kiona Y. Allen; Emily M. Bucholz; Kristin M. Burns; Pedro del Nido; Kathleen N. Fenton; Bruce D. Gelb; James N. Kirkpatrick; Shelby Kutty; Linda M. Lambert; Keila N. Lopez; Laura J. Olivieri; Nathan M. Pajor; Sara K. Pasquali; Christopher J. Petit; Erica Sood; John M. VanBuren; Gail D. Pearson; Shelley D. Miyamoto

doi:10.1016/j.jacc.2022.09.032

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R. Opotowsky^*, Kiona Y. Allen, Emily M. Bucholz, Kristin M. Burns, Pedro del Nido, Kathleen N. Fenton, Bruce D. Gelb, James N. Kirkpatrick, Shelby Kutty, Linda M. Lambert, Keila N. Lopez, Laura J. Olivieri, Nathan M. Pajor, Sara K. Pasquali, Christopher J. Petit, Erica Sood, John M. VanBuren, Gail D. Pearson, Shelley D. Miyamoto^*

^*Corresponding author for this work

Pediatrics

Research output: Contribution to journal › Review article › peer-review

12 Scopus citations

Abstract

The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

Original language	English (US)
Pages (from-to)	2239-2250
Number of pages	12
Journal	Journal of the American College of Cardiology
Volume	80
Issue number	23
DOIs	https://doi.org/10.1016/j.jacc.2022.09.032
State	Published - Dec 6 2022

Funding

The authors acknowledge Victoria Pemberton and D'Andrea Egerson from NHLBI for their assistance with planning the workshop. The authors are also grateful to Nadine Kasparian for her thoughtful, constructive review and suggestions.

Keywords

collaborative science
congenital heart disease
lifespan
outcomes
research

ASJC Scopus subject areas

Cardiology and Cardiovascular Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1016/j.jacc.2022.09.032

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Opotowsky, A. R., Allen, K. Y., Bucholz, E. M., Burns, K. M., del Nido, P., Fenton, K. N., Gelb, B. D., Kirkpatrick, J. N., Kutty, S., Lambert, L. M., Lopez, K. N., Olivieri, L. J., Pajor, N. M., Pasquali, S. K., Petit, C. J., Sood, E., VanBuren, J. M., Pearson, G. D., & Miyamoto, S. D. (2022). Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week. Journal of the American College of Cardiology, 80(23), 2239-2250. https://doi.org/10.1016/j.jacc.2022.09.032

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title = "Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week",

abstract = "The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.",

keywords = "collaborative science, congenital heart disease, lifespan, outcomes, research",

author = "Opotowsky, {Alexander R.} and Allen, {Kiona Y.} and Bucholz, {Emily M.} and Burns, {Kristin M.} and {del Nido}, Pedro and Fenton, {Kathleen N.} and Gelb, {Bruce D.} and Kirkpatrick, {James N.} and Shelby Kutty and Lambert, {Linda M.} and Lopez, {Keila N.} and Olivieri, {Laura J.} and Pajor, {Nathan M.} and Pasquali, {Sara K.} and Petit, {Christopher J.} and Erica Sood and VanBuren, {John M.} and Pearson, {Gail D.} and Miyamoto, {Shelley D.}",

note = "Publisher Copyright: {\textcopyright} 2022 American College of Cardiology Foundation",

year = "2022",

month = dec,

day = "6",

doi = "10.1016/j.jacc.2022.09.032",

language = "English (US)",

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Opotowsky, AR, Allen, KY, Bucholz, EM, Burns, KM, del Nido, P, Fenton, KN, Gelb, BD, Kirkpatrick, JN, Kutty, S, Lambert, LM, Lopez, KN, Olivieri, LJ, Pajor, NM, Pasquali, SK, Petit, CJ, Sood, E, VanBuren, JM, Pearson, GD & Miyamoto, SD 2022, 'Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week', Journal of the American College of Cardiology, vol. 80, no. 23, pp. 2239-2250. https://doi.org/10.1016/j.jacc.2022.09.032

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T2 - JACC Review Topic of the Week

AU - Opotowsky, Alexander R.

AU - Allen, Kiona Y.

AU - Bucholz, Emily M.

AU - Burns, Kristin M.

AU - del Nido, Pedro

AU - Fenton, Kathleen N.

AU - Gelb, Bruce D.

AU - Kirkpatrick, James N.

AU - Kutty, Shelby

AU - Lambert, Linda M.

AU - Lopez, Keila N.

AU - Olivieri, Laura J.

AU - Pajor, Nathan M.

AU - Pasquali, Sara K.

AU - Petit, Christopher J.

AU - Sood, Erica

AU - VanBuren, John M.

AU - Pearson, Gail D.

AU - Miyamoto, Shelley D.

PY - 2022/12/6

Y1 - 2022/12/6

N2 - The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

AB - The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

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KW - congenital heart disease

KW - lifespan

KW - outcomes

KW - research

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ER -

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

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