Peripheral Neuropathy Research Registry: A prospective cohort

PNRR Study Group

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

The Peripheral Neuropathy Research Registry (PNRR) is a prospective cohort of peripheral neuropathy (PN) patients focused on idiopathic axonal peripheral neuropathy. Patients with diabetic, human immunodeficiency virus-, and chemotherapy-induced peripheral neuropathies are enrolled as comparison groups. The PNRR is a multi-center collaboration initiated and funded by the Foundation for Peripheral Neuropathy (FPN) with the objective to recruit a well characterized cohort of patients with different phenotypes and symptoms in each diagnostic category, and to advance research through development of biomarkers and identification of previously unknown causes of PN. The overall goal of the initiative is to find disease-altering treatments and better symptom relief for patients. We present the study design, types of data collected, and characteristics of the first 1150 patients enrolled. We also discuss ongoing analyses on this dataset, including untargeted-omics methodologies.

Original languageEnglish (US)
Pages (from-to)39-47
Number of pages9
JournalJournal of the Peripheral Nervous System
Volume24
Issue number1
DOIs
StatePublished - Mar 2019

ASJC Scopus subject areas

  • Neuroscience(all)
  • Clinical Neurology

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