Privacy challenges with genetic information

Joyce Kim*, Sara Katsanis

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingChapter

2 Scopus citations

Abstract

DNA technologies are used routinely in missing persons investigations because they allow investigators to connect a found individual, or remains that cannot be identified, to an open missing persons case. Currently, the standard genetic markers included in a DNA profile do not include any determining traits other than sex. Nevertheless, the predictive nature of genetic information, its relevance for family members, and its past use to support discrimination, at times, heightens public concerns over genetic privacy. Furthermore, as DNA technologies develop, the possibility of applying broader marker panels, genome sequencing, and next-generation technologies that may assess thousands of points in a genome grows, as does the potential inclusion of trait-predictive markers to predict race, ethnicity, height, eye-color, or other similar metrics in order to better guide investigations.

Original languageEnglish (US)
Title of host publicationHandbook of Missing Persons
PublisherSpringer International Publishing
Pages379-387
Number of pages9
ISBN (Electronic)9783319401997
ISBN (Print)9783319401973
DOIs
StatePublished - Jan 1 2016

Keywords

  • Consent
  • DNA
  • Genetic information
  • Privacy
  • Trust

ASJC Scopus subject areas

  • General Psychology

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