PROCESS OF ENGAGING COMMUNITY AND SCIENTIFIC PARTNERS IN THE DEVELOPMENT OF THE CIRCL-CHICAGO STUDY PROTOCOL

Justin D. Smith*, Allison J. Carroll, Olutobi A. Sanuade, Rebecca Johnson, Emily M. Abramsohn, Hiba Abbas, Faraz S. Ahmad, Alice Eggleston, Danielle Lazar, Stacy Tessler Lindau, Megan McHugh, Nivedita Mohanty, Sarah Philbin, El A. Pinkerton, Linda L. Rosul, James L. Merle, Yacob G. Tedla, Theresa L. Walunas, Paris Davis, Abel Kho

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Objectives: Hypertension affects 1 in 3 adults in the United States and disproportionately affects African Americans. Kaiser Permanente demonstrated that a “bundle” of evidence-based interventions significantly increased blood pressure control rates. This paper describes a multiyear process of developing the protocol for a trial of the Kaiser bundle for implementation in under-resourced urban communities experiencing cardiovascular health disparities during the planning phase of this biphasic award (UG3/UH3). Methods: The protocol was developed by a collaboration of faith-based community members, representatives from community health center practice-based research networks, and academic scientists with expertise in health disparities, implementation science, community-engaged research, social care interventions, and health informatics. Scientists from the National Institutes of Health and the other grantees of the Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR) Alliance also contributed to developing our protocol. Results: The protocol is a hybrid type 3 effectiveness-implementation study using a parallel cluster randomized trial to test the impact of practice facilitation on implementation of the Kaiser bundle in community health centers compared with implementation without facilitation. A central strategy to the Kaiser bundle is to coordinate implementation via faith-based and other community organizations for recruitment and navigation of resources for health-related social risks. Conclusions: The proposed research has the potential to improve identification, diagnosis, and control of blood pressure among under-resourced communities by connecting community entities and healthcare organizations in new ways. Faith-based organizations are a trusted voice in African American communities that could be instrumental for eliminating disparities.

Original languageEnglish (US)
Pages (from-to)18-26
Number of pages9
JournalEthnicity and Disease
VolumeDECIPHeR
DOIs
StatePublished - Apr 24 2023

Funding

This research is supported by grant UG3HL154297 from the NHLBI to A.K., J.D.S., and P.D. We wish to thank the rest of the members of the CIRCL-Chicago team and all of our community partners as well as Christina Yong for editing and writing assistance. We also wish to thank the other grantees in the DECIPHeR Alliance and the scientists at the NIH who contributed to the development of the protocol described in this paper. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. S.T.L. discloses that she is founder and co-owner of NowPow LLC, a company acquired in 2021 by Unite Us LLC, where she is currently an advisor and stockholder. She is president of MAPSCorps, a 501c3 nonprofit organization, and serves on other nonprofit boards. Neither the University of Chicago nor the University of Chicago Medicine endorses or promotes any NowPow, Unite Us, or MAPSCorps product or service. S.T.L. holds debt in Glenbervie Health LLC and owns health care-related investments managed by third parties. S.T.L. is a contributor to UpToDate, Inc. The University of Chicago receives royalties from UpToDate, Inc. In addition to the acknowledged funding for the CIRCL study, S.T.L., E.M.A., and E.A.P. are also supported by R01MD012630, R01AG064949, R01DK127961, R01HL150909, and P30CA014599. T.L.W. receives research funding from Gilead Sciences for work related to coronavirus disease (COVID) in immunosuppressed populations. O.A.S. is supported by an Administrative Supplement to Promote a Diverse Research Community from the Office of the Vice President for Research at the University of Utah, awarded to J.D.S. F.S.A. was supported by grants from the National Institutes of Health/National Heart, Lung, and Blood Institute (K23HL155970) and the American Heart Association (AHA number 856917).

Keywords

  • Community Engagement
  • Community-Academic Partnership
  • Health Disparities
  • Health-Related Social Risks
  • Hypertension
  • Implementation Research

ASJC Scopus subject areas

  • Epidemiology

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