TY - JOUR
T1 - Professional Bereavement Photography in the Setting of Perinatal Loss
T2 - A Qualitative Analysis
AU - Ramirez, Faustine D.
AU - Bogetz, Jori F.
AU - Kufeld, Megan
AU - Yee, Lynn M.
N1 - Funding Information:
We would like to thank Soulumination and Now I Lay Me Down To Sleep. We also thank Professor Daniel Hoffman from the University of Washington Department of Anthropology for guidance in the design and conceptualization of this study. We are appreciative to the healthcare professionals and photographers who took valuable time to share their perspectives and experiences with us. We are grateful for the openness, trust, and courage of the bereaved parents who shared their experiences and stories of their children with us. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Dr. Ramirez received funding from the NIH, through UCSF-CTSI Grant Number TL1-TR001871, and from the University of Washington Mary Gates Endowment. Dr. Yee is supported by the NICHD K12 HD050121-11. The contents are solely the responsibility of the authors and do not necessarily represent the official views of the funders. The funding organizations were not involved in the design and conduct of the study, collection, analysis, and interpretation of the data, or preparation, review or approval of the manuscript.
Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Dr. Ramirez received funding from the NIH, through UCSF-CTSI Grant Number TL1-TR001871, and from the University of Washington Mary Gates Endowment. Dr. Yee is supported by the NICHD K12 HD050121-11. The contents are solely the responsibility of the authors and do not necessarily represent the official views of the funders. The funding organizations were not involved in the design and conduct of the study, collection, analysis, and interpretation of the data, or preparation, review or approval of the manuscript.
Publisher Copyright:
© The Author(s) 2019.
PY - 2019
Y1 - 2019
N2 - Perinatal loss, including fetal and infant death, is a devastating experience for parents, resulting in long-term adverse physical and psychosocial outcomes. However, little is known about what services might best support grieving parents. We aimed to understand the role of professional bereavement photography in assisting the grieving process of parents who have lost a fetus or infant, by examining the perspectives of bereaved parents, professional photographers, and health care professionals. Twenty semistructured interviews were conducted, and interview transcripts were analyzed using modified grounded theory. Twenty-three individuals participated, including 6 bereaved parents, 8 photographers, and 9 health care professionals. Analyses generated 5 major themes describing ways in which the photographs were valuable to parents: validation of the experience, permission to share, creation of a permanent and tangible legacy, creation of positive memories, and moving forward after the loss. Hospitals should consider incorporation of professional bereavement photography services into palliative care and bereavement programs.
AB - Perinatal loss, including fetal and infant death, is a devastating experience for parents, resulting in long-term adverse physical and psychosocial outcomes. However, little is known about what services might best support grieving parents. We aimed to understand the role of professional bereavement photography in assisting the grieving process of parents who have lost a fetus or infant, by examining the perspectives of bereaved parents, professional photographers, and health care professionals. Twenty semistructured interviews were conducted, and interview transcripts were analyzed using modified grounded theory. Twenty-three individuals participated, including 6 bereaved parents, 8 photographers, and 9 health care professionals. Analyses generated 5 major themes describing ways in which the photographs were valuable to parents: validation of the experience, permission to share, creation of a permanent and tangible legacy, creation of positive memories, and moving forward after the loss. Hospitals should consider incorporation of professional bereavement photography services into palliative care and bereavement programs.
KW - bereavement
KW - grief
KW - perinatal loss
KW - photography
KW - qualitative research
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U2 - 10.1177/2333794X19854941
DO - 10.1177/2333794X19854941
M3 - Article
C2 - 31236429
AN - SCOPUS:85076406529
SN - 2333-794X
VL - 6
JO - Global Pediatric Health
JF - Global Pediatric Health
ER -