PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study

Elizabeth A Hahn; LARRY A. ALLEN; CHRISTOPHER S. LEE; QUIN E. DENFELD; JOSEF STEHLIK; David Cella; JOANN LINDENFELD; JEFFREY J. TEUTEBERG; COLLEEN K. MCILVENNAN; MICHAEL S. KIERNAN; DAVID G. BEISER; MARY N. WALSH; ERIC D. ADLER; Bernice Ruo; JAMES K. KIRKLIN; LIVIU KLEIN; K. A.T.Y. BEDJETI; PETER D. CUMMINGS; JAMES L. BURNS; ALYSSA M. VELA; KATHLEEN L. GRADY

doi:10.1016/j.cardfail.2023.03.013

PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study

Elizabeth A Hahn^*, LARRY A. ALLEN, CHRISTOPHER S. LEE, QUIN E. DENFELD, JOSEF STEHLIK, David Cella, JOANN LINDENFELD, JEFFREY J. TEUTEBERG, COLLEEN K. MCILVENNAN, MICHAEL S. KIERNAN, DAVID G. BEISER, MARY N. WALSH, ERIC D. ADLER, Bernice Ruo, JAMES K. KIRKLIN, LIVIU KLEIN, K. A.T.Y. BEDJETI, PETER D. CUMMINGS, JAMES L. BURNS, ALYSSA M. VELAKATHLEEN L. GRADY

^*Corresponding author for this work

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4 Scopus citations

Abstract

Study participants (n = 272) completed 12 Patient-Reported Outcomes Measurement Information System (PROMIS) physical, mental and social health measures (questionnaires) prior to implantation of a left ventricular assist device (LVAD) and again at 3 and 6 months postimplant. All but 1 PROMIS measure demonstrated significant improvement from pre-implant to 3 months; there was little change between 3 and 6 months. Because PROMIS measures were developed in the general population, patients with an LVAD, their caregivers and their clinicians can interpret the meaning of PROMIS scores in relation to the general population, helping them to monitor a return to normalcy in everyday life.

Original language	English (US)
Pages (from-to)	1398-1411
Number of pages	14
Journal	Journal of Cardiac Failure
Volume	29
Issue number	10
DOIs	https://doi.org/10.1016/j.cardfail.2023.03.013
State	Published - Oct 2023

Keywords

Heart failure
left ventricular assist device
longitudinal study
patient-reported outcomes

ASJC Scopus subject areas

Cardiology and Cardiovascular Medicine

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Hahn, E. A., ALLEN, LARRY. A., LEE, CHRISTOPHER. S., DENFELD, QUIN. E., STEHLIK, JOSEF., Cella, D., LINDENFELD, JOANN., TEUTEBERG, JEFFREY. J., MCILVENNAN, COLLEEN. K., KIERNAN, MICHAEL. S., BEISER, DAVID. G., WALSH, MARY. N., ADLER, ERIC. D., Ruo, B., KIRKLIN, JAMES. K., KLEIN, LIVIU., BEDJETI, K. A. T. Y., CUMMINGS, PETER. D., BURNS, JAMES. L., ... GRADY, KATHLEEN. L. (2023). PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study. Journal of Cardiac Failure, 29(10), 1398-1411. https://doi.org/10.1016/j.cardfail.2023.03.013

@article{96bbc05716be43cfab21861479b44ea6,

title = "PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study",

abstract = "Study participants (n = 272) completed 12 Patient-Reported Outcomes Measurement Information System (PROMIS) physical, mental and social health measures (questionnaires) prior to implantation of a left ventricular assist device (LVAD) and again at 3 and 6 months postimplant. All but 1 PROMIS measure demonstrated significant improvement from pre-implant to 3 months; there was little change between 3 and 6 months. Because PROMIS measures were developed in the general population, patients with an LVAD, their caregivers and their clinicians can interpret the meaning of PROMIS scores in relation to the general population, helping them to monitor a return to normalcy in everyday life.",

keywords = "Heart failure, left ventricular assist device, longitudinal study, patient-reported outcomes",

author = "Hahn, {Elizabeth A} and ALLEN, {LARRY A.} and LEE, {CHRISTOPHER S.} and DENFELD, {QUIN E.} and JOSEF STEHLIK and David Cella and JOANN LINDENFELD and TEUTEBERG, {JEFFREY J.} and MCILVENNAN, {COLLEEN K.} and KIERNAN, {MICHAEL S.} and BEISER, {DAVID G.} and WALSH, {MARY N.} and ADLER, {ERIC D.} and Bernice Ruo and KIRKLIN, {JAMES K.} and LIVIU KLEIN and BEDJETI, {K. A.T.Y.} and CUMMINGS, {PETER D.} and BURNS, {JAMES L.} and VELA, {ALYSSA M.} and GRADY, {KATHLEEN L.}",

note = "Funding Information: This study was funded by the National Heart, Lung and Blood Institute of the National Institutes of Health; grant # R01-HL130502. Publisher Copyright: {\textcopyright} 2023 Elsevier Inc.",

year = "2023",

month = oct,

doi = "10.1016/j.cardfail.2023.03.013",

language = "English (US)",

volume = "29",

pages = "1398--1411",

journal = "Journal of Cardiac Failure",

issn = "1071-9164",

publisher = "Elsevier B.V.",

number = "10",

}

Hahn, EA, ALLEN, LARRYA, LEE, CHRISTOPHERS, DENFELD, QUINE, STEHLIK, JOSEF, Cella, D, LINDENFELD, JOANN, TEUTEBERG, JEFFREYJ, MCILVENNAN, COLLEENK, KIERNAN, MICHAELS, BEISER, DAVIDG, WALSH, MARYN, ADLER, ERICD, Ruo, B, KIRKLIN, JAMESK, KLEIN, LIVIU, BEDJETI, KATY, CUMMINGS, PETERD, BURNS, JAMESL, VELA, ALYSSAM & GRADY, KATHLEENL 2023, 'PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study', Journal of Cardiac Failure, vol. 29, no. 10, pp. 1398-1411. https://doi.org/10.1016/j.cardfail.2023.03.013

PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study. / Hahn, Elizabeth A; ALLEN, LARRY A.; LEE, CHRISTOPHER S. et al.
In: Journal of Cardiac Failure, Vol. 29, No. 10, 10.2023, p. 1398-1411.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - PROMIS

T2 - Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study

AU - Hahn, Elizabeth A

AU - ALLEN, LARRY A.

AU - LEE, CHRISTOPHER S.

AU - DENFELD, QUIN E.

AU - STEHLIK, JOSEF

AU - Cella, David

AU - LINDENFELD, JOANN

AU - TEUTEBERG, JEFFREY J.

AU - MCILVENNAN, COLLEEN K.

AU - KIERNAN, MICHAEL S.

AU - BEISER, DAVID G.

AU - WALSH, MARY N.

AU - ADLER, ERIC D.

AU - Ruo, Bernice

AU - KIRKLIN, JAMES K.

AU - KLEIN, LIVIU

AU - BEDJETI, K. A.T.Y.

AU - CUMMINGS, PETER D.

AU - BURNS, JAMES L.

AU - VELA, ALYSSA M.

AU - GRADY, KATHLEEN L.

PY - 2023/10

Y1 - 2023/10

N2 - Study participants (n = 272) completed 12 Patient-Reported Outcomes Measurement Information System (PROMIS) physical, mental and social health measures (questionnaires) prior to implantation of a left ventricular assist device (LVAD) and again at 3 and 6 months postimplant. All but 1 PROMIS measure demonstrated significant improvement from pre-implant to 3 months; there was little change between 3 and 6 months. Because PROMIS measures were developed in the general population, patients with an LVAD, their caregivers and their clinicians can interpret the meaning of PROMIS scores in relation to the general population, helping them to monitor a return to normalcy in everyday life.

AB - Study participants (n = 272) completed 12 Patient-Reported Outcomes Measurement Information System (PROMIS) physical, mental and social health measures (questionnaires) prior to implantation of a left ventricular assist device (LVAD) and again at 3 and 6 months postimplant. All but 1 PROMIS measure demonstrated significant improvement from pre-implant to 3 months; there was little change between 3 and 6 months. Because PROMIS measures were developed in the general population, patients with an LVAD, their caregivers and their clinicians can interpret the meaning of PROMIS scores in relation to the general population, helping them to monitor a return to normalcy in everyday life.

KW - Heart failure

KW - left ventricular assist device

KW - longitudinal study

KW - patient-reported outcomes

UR - http://www.scopus.com/inward/record.url?scp=85159118296&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85159118296&partnerID=8YFLogxK

U2 - 10.1016/j.cardfail.2023.03.013

DO - 10.1016/j.cardfail.2023.03.013

M3 - Article

C2 - 37004864

AN - SCOPUS:85159118296

SN - 1071-9164

VL - 29

SP - 1398

EP - 1411

JO - Journal of Cardiac Failure

JF - Journal of Cardiac Failure

IS - 10

ER -

Hahn EA, ALLEN LARRYA, LEE CHRISTOPHERS, DENFELD QUINE, STEHLIK JOSEF, Cella D et al. PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study. Journal of Cardiac Failure. 2023 Oct;29(10):1398-1411. doi: 10.1016/j.cardfail.2023.03.013

PROMIS: Physical, Mental and Social Health Outcomes Improve From Before to Early After LVAD Implant: Findings From the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study

Abstract

Keywords

ASJC Scopus subject areas

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