TY - JOUR
T1 - Prospective parents’ perspectives on antenatal decision making for the anticipated birth of a periviable infant
AU - Tucker Edmonds, Brownsyne
AU - Savage, Teresa A.
AU - Kimura, Robert E.
AU - Kilpatrick, Sarah J.
AU - Kuppermann, Miriam
AU - Grobman, William
AU - Kavanaugh, Karen
N1 - Funding Information:
This work was supported by the National Institute of Nursing Research (NINR) under grant [R01 NR07904].
Funding Information:
We thank the parents who participated in the larger study. This work was supported by the National Institute of Nursing Research (NINR) under grant [R01 NR07904]. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of NINR. The final peer-reviewed manuscript is subject to the National Institutes of Health Public Access Policy.
Funding Information:
This work was supported by the National Institute of Nursing Research (NINR) under grant [R01 NR07904]. We thank the parents who participated in the larger study. This work was supported by the National Institute of Nursing Research (NINR) under grant [R01 NR07904]. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of NINR. The final peer-reviewed manuscript is subject to the National Institutes of Health Public Access Policy.
Publisher Copyright:
© 2017, © 2017 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2019/3/4
Y1 - 2019/3/4
N2 - Objective: To examine prospective parents’ perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. Study design: Qualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases). Results: Participants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like “brain damage”, “disability”, and “handicap”. The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a “fighting chance”; others voiced concerns about “best interest”, a “healthy baby”, “pain and suffering”, and religious faith. Conclusions: Our findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.
AB - Objective: To examine prospective parents’ perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. Study design: Qualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases). Results: Participants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like “brain damage”, “disability”, and “handicap”. The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a “fighting chance”; others voiced concerns about “best interest”, a “healthy baby”, “pain and suffering”, and religious faith. Conclusions: Our findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.
KW - Decision making
KW - antenatal counseling
KW - parents
KW - premature infants
KW - values
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U2 - 10.1080/14767058.2017.1393066
DO - 10.1080/14767058.2017.1393066
M3 - Article
C2 - 29103318
AN - SCOPUS:85033491935
SN - 1476-7058
VL - 32
SP - 820
EP - 825
JO - Journal of Maternal-Fetal and Neonatal Medicine
JF - Journal of Maternal-Fetal and Neonatal Medicine
IS - 5
ER -