Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations

Sarah E. Van Pilsum Rasmussen; Jefferson Uriarte; Naomi Anderson; Brianna Doby; Alexander Ferzola; Hannah Sung; Carisa Cooney; Gerald Brandacher; Elisa Gordon; Dorry L. Segev; Macey L. Henderson

doi:10.1111/ctr.14066

Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations

Sarah E. Van Pilsum Rasmussen, Jefferson Uriarte, Naomi Anderson, Brianna Doby, Alexander Ferzola, Hannah Sung, Carisa Cooney, Gerald Brandacher, Elisa Gordon, Dorry L. Segev, Macey L. Henderson^*

^*Corresponding author for this work

Surgery, Transplant Surgery Division

Research output: Contribution to journal › Article › peer-review

10 Scopus citations

Abstract

As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.

Original language	English (US)
Article number	e14066
Journal	Clinical Transplantation
Volume	34
Issue number	11
DOIs	https://doi.org/10.1111/ctr.14066
State	Published - Nov 2020

Funding

This work was supported by grant number RT170093 from the Department of Defense (PIs: Henderson, Gordon, Brandacher). The analyses described here are the responsibility of the authors alone and do not necessarily reflect the views or policies of the Department of Health and Human Services, the Department of Defense, nor does mention of trade names, commercial products or organizations imply endorsement by the US Government. This work was supported by grant number RT170093 from the Department of Defense (PIs: Henderson, Gordon, Brandacher). The analyses described here are the responsibility of the authors alone and do not necessarily reflect the views or policies of the Department of Health and Human Services, the Department of Defense, nor does mention of trade names, commercial products or organizations imply endorsement by the US Government.

Keywords

Vascular Composite Allotransplantation
content analysis
education
reconstructive transplantation
vascular composite allograft

ASJC Scopus subject areas

Transplantation

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1111/ctr.14066

Cite this

Van Pilsum Rasmussen, S. E., Uriarte, J., Anderson, N., Doby, B., Ferzola, A., Sung, H., Cooney, C., Brandacher, G., Gordon, E., Segev, D. L., & Henderson, M. L. (2020). Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations. Clinical Transplantation, 34(11), Article e14066. https://doi.org/10.1111/ctr.14066

@article{15a430fef7bf48fdb6307bf5e0af788e,

title = "Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations",

abstract = "As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.",

keywords = "Vascular Composite Allotransplantation, content analysis, education, reconstructive transplantation, vascular composite allograft",

author = "{Van Pilsum Rasmussen}, {Sarah E.} and Jefferson Uriarte and Naomi Anderson and Brianna Doby and Alexander Ferzola and Hannah Sung and Carisa Cooney and Gerald Brandacher and Elisa Gordon and Segev, {Dorry L.} and Henderson, {Macey L.}",

note = "Publisher Copyright: {\textcopyright} 2020 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd",

year = "2020",

month = nov,

doi = "10.1111/ctr.14066",

language = "English (US)",

volume = "34",

journal = "Clinical Transplantation",

issn = "0902-0063",

publisher = "Wiley-Blackwell Publishing Ltd",

number = "11",

}

Van Pilsum Rasmussen, SE, Uriarte, J, Anderson, N, Doby, B, Ferzola, A, Sung, H, Cooney, C, Brandacher, G, Gordon, E, Segev, DL & Henderson, ML 2020, 'Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations', Clinical Transplantation, vol. 34, no. 11, e14066. https://doi.org/10.1111/ctr.14066

TY - JOUR

T1 - Public education materials about Vascular Composite Allotransplantation and donation in the United States

T2 - Current scope and limitations

AU - Van Pilsum Rasmussen, Sarah E.

AU - Uriarte, Jefferson

AU - Anderson, Naomi

AU - Doby, Brianna

AU - Ferzola, Alexander

AU - Sung, Hannah

AU - Cooney, Carisa

AU - Brandacher, Gerald

AU - Gordon, Elisa

AU - Segev, Dorry L.

AU - Henderson, Macey L.

PY - 2020/11

Y1 - 2020/11

N2 - As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.

AB - As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.

KW - Vascular Composite Allotransplantation

KW - content analysis

KW - education

KW - reconstructive transplantation

KW - vascular composite allograft

UR - http://www.scopus.com/inward/record.url?scp=85092101876&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85092101876&partnerID=8YFLogxK

U2 - 10.1111/ctr.14066

DO - 10.1111/ctr.14066

M3 - Article

C2 - 32810365

AN - SCOPUS:85092101876

SN - 0902-0063

VL - 34

JO - Clinical Transplantation

JF - Clinical Transplantation

IS - 11

M1 - e14066

ER -

Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

Other files and links

Fingerprint

Cite this