Reaching Parents Through an Online Community

Anne Christine Boat, Matthew Monteleone, Jennifer J. Lee, Lena S. Sun*

*Corresponding author for this work

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Scientific studies in animal models have demonstrated the neurotoxic effects of anesthetic and sedative drugs on the developing brain. Human studies, however, have been limited and less conclusive. The implications for clinical care remain unclear, and there is a critical need for further research on anesthetic toxicity to ensure safe anesthesia practices for infants and children. The sixth PANDA Symposium organized a session on "Engaging Stakeholders to Support Research" to facilitate dialog around improving communication and collaboration among stakeholders and to promote coordinated research efforts. Key stakeholders include patients, families, clinicians, researchers, community organizations, and federal agencies. This article provides an overview of an online platform called the Family Talkboard, a novel method which is destined to enhance patient outreach, engagement, and quality improvement, as well as outcomes research.

Original languageEnglish (US)
Pages (from-to)122-124
Number of pages3
JournalJournal of Neurosurgical Anesthesiology
Volume31
Issue number1
DOIs
StatePublished - Jan 1 2019

Keywords

  • Quality Improvement (QI)
  • online community
  • outcomes research
  • outreach
  • patient engagement

ASJC Scopus subject areas

  • Surgery
  • Clinical Neurology
  • Anesthesiology and Pain Medicine

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