Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS®

qualitative results from a mixed cancer sample

John M. Salsman*, Crystal L. Park, Elizabeth A Hahn, Mallory A. Snyder, Login S. George, Michael F. Steger, Thomas Merluzzi, David Cella

*Corresponding author for this work

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS) is a National Institutes of Health initiative designed to improve patient-reported outcomes using state-of-the-art psychometric methods. The aim of this study is to describe qualitative efforts to identify and refine items from psychological well-being subdomains for future testing, psychometric evaluation, and inclusion within PROMIS. Method: Seventy-two items from eight existing measures of positive affect, life satisfaction, meaning & purpose, and general self-efficacy were reviewed, and 48 new items were identified or written where content was lacking. Cognitive interviews were conducted in patients with cancer (n = 20; 5 interviews per item) to evaluate comprehensibility, clarity, and response options of candidate items. Results: A Lexile analysis confirmed that all items were written at the sixth grade reading level or below. A majority of patients demonstrated good understanding and logic for all items; however, nine items were identified as “moderately difficult” or “difficult” to answer. Patients reported a strong preference for confidence versus frequency response options for general self-efficacy items. Conclusions: Altogether, 108 items were sufficiently comprehensible and clear (34 positive affect, 10 life satisfaction, 44 meaning & purpose, 20 general self-efficacy). Future research will examine the psychometric properties of the proposed item banks for further refinement and validation as PROMIS measures.

Original languageEnglish (US)
Pages (from-to)2471-2476
Number of pages6
JournalQuality of Life Research
Volume27
Issue number9
DOIs
StatePublished - Sep 1 2018

Fingerprint

Information Systems
Self Efficacy
Psychometrics
Psychology
Neoplasms
Interviews
National Institutes of Health (U.S.)
Reading
Patient Reported Outcome Measures

Keywords

  • Cancer
  • Cognitive interviews
  • Life satisfaction
  • Meaning
  • Measure development
  • PROMIS
  • Positive affect
  • Qualitative
  • Self-efficacy
  • Well-being

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Salsman, John M. ; Park, Crystal L. ; Hahn, Elizabeth A ; Snyder, Mallory A. ; George, Login S. ; Steger, Michael F. ; Merluzzi, Thomas ; Cella, David. / Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS® : qualitative results from a mixed cancer sample. In: Quality of Life Research. 2018 ; Vol. 27, No. 9. pp. 2471-2476.
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abstract = "Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS) is a National Institutes of Health initiative designed to improve patient-reported outcomes using state-of-the-art psychometric methods. The aim of this study is to describe qualitative efforts to identify and refine items from psychological well-being subdomains for future testing, psychometric evaluation, and inclusion within PROMIS. Method: Seventy-two items from eight existing measures of positive affect, life satisfaction, meaning & purpose, and general self-efficacy were reviewed, and 48 new items were identified or written where content was lacking. Cognitive interviews were conducted in patients with cancer (n = 20; 5 interviews per item) to evaluate comprehensibility, clarity, and response options of candidate items. Results: A Lexile analysis confirmed that all items were written at the sixth grade reading level or below. A majority of patients demonstrated good understanding and logic for all items; however, nine items were identified as “moderately difficult” or “difficult” to answer. Patients reported a strong preference for confidence versus frequency response options for general self-efficacy items. Conclusions: Altogether, 108 items were sufficiently comprehensible and clear (34 positive affect, 10 life satisfaction, 44 meaning & purpose, 20 general self-efficacy). Future research will examine the psychometric properties of the proposed item banks for further refinement and validation as PROMIS measures.",
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Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS® : qualitative results from a mixed cancer sample. / Salsman, John M.; Park, Crystal L.; Hahn, Elizabeth A; Snyder, Mallory A.; George, Login S.; Steger, Michael F.; Merluzzi, Thomas; Cella, David.

In: Quality of Life Research, Vol. 27, No. 9, 01.09.2018, p. 2471-2476.

Research output: Contribution to journalArticle

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T1 - Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS®

T2 - qualitative results from a mixed cancer sample

AU - Salsman, John M.

AU - Park, Crystal L.

AU - Hahn, Elizabeth A

AU - Snyder, Mallory A.

AU - George, Login S.

AU - Steger, Michael F.

AU - Merluzzi, Thomas

AU - Cella, David

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N2 - Purpose: The Patient-Reported Outcomes Measurement Information System (PROMIS) is a National Institutes of Health initiative designed to improve patient-reported outcomes using state-of-the-art psychometric methods. The aim of this study is to describe qualitative efforts to identify and refine items from psychological well-being subdomains for future testing, psychometric evaluation, and inclusion within PROMIS. Method: Seventy-two items from eight existing measures of positive affect, life satisfaction, meaning & purpose, and general self-efficacy were reviewed, and 48 new items were identified or written where content was lacking. Cognitive interviews were conducted in patients with cancer (n = 20; 5 interviews per item) to evaluate comprehensibility, clarity, and response options of candidate items. Results: A Lexile analysis confirmed that all items were written at the sixth grade reading level or below. A majority of patients demonstrated good understanding and logic for all items; however, nine items were identified as “moderately difficult” or “difficult” to answer. Patients reported a strong preference for confidence versus frequency response options for general self-efficacy items. Conclusions: Altogether, 108 items were sufficiently comprehensible and clear (34 positive affect, 10 life satisfaction, 44 meaning & purpose, 20 general self-efficacy). Future research will examine the psychometric properties of the proposed item banks for further refinement and validation as PROMIS measures.

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