Reproductive Decisions in People With Sickle Cell Disease or Sickle Cell Trait

Agatha M. Gallo, Diana Wilkie, Marie Suarez, Richard Labotka, Robert Molokie, Alexis Thompson, Patricia Hershberger, Bonnye Johnson

Research output: Contribution to journalArticlepeer-review

45 Scopus citations


In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes, and personal feelings of people with sickle cell disease or sickle cell trait related to making informed reproductive health decisions. Three focus groups were conducted with a total of 15 people who had either SCD or SCT. Five themes were identified: health-related issues in sickle cell disease, testing for sickle cell trait, partner choice, sharing sickle cell status with partners, and reproductive options. These findings enhance understanding of the reproductive experiences in people with SCD and SCT and provide the groundwork for developing an educational intervention focused on making informed decisions about becoming a parent.

Original languageEnglish (US)
Pages (from-to)1073-1090
Number of pages18
JournalWestern Journal of Nursing Research
Issue number8
StatePublished - Dec 2010


  • community
  • focus groups
  • qualitative

ASJC Scopus subject areas

  • Nursing(all)


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